Involvement of adolescent representatives and coresearchers in mental health research: Experiences from a research project.
Introduction: In spite of adolescents' rights to be involved in decisions that concern their health and life, limited research has been published reporting on their involvement in mental health research. Therefore, we aim to present experiences and reflections based on the involvement of adolescents...
| Publicado en: | Health Expectations Vol. 25; no. 1; pp. 322 - 333 |
|---|---|
| Autores principales: | , , , , , , , , , , |
| Formato: | research tables/charts Journal Article |
| Publicado: |
Wiley-Blackwell
Feb2022
|
| Acceso en línea: | Ver este registro en EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ccm&AN=155283450&site=ehost-live header: @attributes: shortDbName: ccm uiTerm: 155283450 longDbName: CINAHL Complete uiTag: AN controlInfo: bkinfo: dissinfo: jinfo: jid: 13696513 EVY jtl: Health Expectations issn: 13696513 maglogo: Y pubinfo: dt: Feb2022 vid: 25 iid: 1 pid: 480 pub: Wiley-Blackwell place: Malden, Massachusetts artinfo: ui: 155283450 153488667 155283450 155283450 10.1111/hex.13383 155283450 ppf: 322 ppct: 11 formats: fmt: – @attributes: type: T – @attributes: type: P tig: atl: Involvement of adolescent representatives and coresearchers in mental health research: Experiences from a research project. aug: au: Viksveen, Petter Cardenas, Nicole E. Ibenfeldt, Maya Meldahl, Laia G. Krijger, Lou Game, Julia R. Andvik, Maren McLean Cuddeford, Oliver Duerto, Samuel Mustafa, Murad Tong, Mathias affil: Department for Quality and Health Technology, Faculty of Health Sciences, SHARE—Center for Resilience in Healthcare, University of Stavanger, Stavanger, Norway sug: subj: Research, Mental Health Research Subjects In Adolescence Consumer Participation Collaboration Research Personnel Human Ethnographic Research Adolescence Narratives Thematic Analysis Commitment Reflection Altruism Role Researcher-Subject Relations Decision Making, Shared Funding Source Adolescent: 13-18 years ab: Introduction: In spite of adolescents' rights to be involved in decisions that concern their health and life, limited research has been published reporting on their involvement in mental health research. Therefore, we aim to present experiences and reflections based on the involvement of adolescents in mental health research, to describe the collaborative relationship between researchers and coresearchers, including the values that underpin their collaboration. Methods: An autoethnographic approach was used, combined with group reflections. The process was jointly developed, carried out and analysed by adolescent coresearchers and the project's lead researcher over a period of 2 years. The article is jointly authored by the researcher and the ten coresearchers. Results: Six themes were developed to describe our collaborative relationship, resulting in the involvement of adolescents in decisions about research priorities; in planning and carrying out the research; through to analysis, dissemination and communication of results. The themes include: (1) Commitment motivated by altruism, personal interests and a common purpose; (2) Inclusiveness and support to reduce social uncertainty and strengthen collaboration; (3) Reduced power differentials while ensuring clarity of roles and tasks; (4) Diversity in representation to expand the perspectives of 'the adolescent voice'; (5) Self‐determination—supporting adolescents' involvement in decision‐making processes; and (6) Flexible and systematic project management. The themes describe the collaboration, the underlying values and motives, the challenges faced and how they were overcome. Conclusion: This self‐reflective process describing a 4‐year collaborative research project resulted in the development of recommendations for involving adolescents in mental health research. The recommendations could potentially contribute to a change of 'research culture' to expand the currently limited involvement of adolescents in research. Patient or Public Contribution: Adolescents have contributed as coresearchers through all phases of the research project and as coauthors of this article, including planning, participation in the self‐ and group‐reflective processes, analysis and authoring the article. pubtype: Academic Journal doctype: research tables/charts Journal Article ougenre: Article language: English refInfo: holdings: @attributes: islocal: N |
|---|