A framework for involving coproduction partners in research about young people with type 1 diabetes.

Background: Involvement of end‐users in research can enhance its quality, relevance, credibility and legitimacy; however, the processes through which these changes occur are unclear. Our aim was to explore a coproduction research team's experiences of their involvement in research about young people...

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Publicado en:Health Expectations Vol. 25; no. 1; pp. 430 - 443
Autores principales: Desborough, Jane, Parkinson, Anne, Lewis, Fiona, Ebbeck, Harry, Banfield, Michelle, Phillips, Christine
Formato: research tables/charts Journal Article
Publicado: Wiley-Blackwell Feb2022
Acceso en línea:Ver este registro en EBSCOhost
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          Desborough, Jane
          Parkinson, Anne
          Lewis, Fiona
          Ebbeck, Harry
          Banfield, Michelle
          Phillips, Christine
        affil: Department of Health Services, Research and Policy, Research School of Population Health, College of Health and Medicine, Australian National University, Canberra Australian Capital Territory,, Australia
      sug:
        subj:
          Research Personnel Psychosocial Factors
          Research, Medical
          Consumer Participation
          Diabetes Mellitus, Type 2
          Diabetic Patients Psychosocial Factors
          Human
          Semi-Structured Interview
          Grounded Theory
          Conceptual Framework
          Exploratory Research
          Audiorecording
          Funding Source
      ab: Background: Involvement of end‐users in research can enhance its quality, relevance, credibility and legitimacy; however, the processes through which these changes occur are unclear. Our aim was to explore a coproduction research team's experiences of their involvement in research about young people with type 1 diabetes mellitus (T1DM). Methods: Semi‐structured interviews conducted with two young people with T1DM, two parents, one diabetes educator, one endocrinologist‐scientist and one research‐engineer explored experiences of coproduction research and its impact on both the research and the participants. Drawing on grounded theory, we undertook inductive analysis and storyline mapping to develop a theorized framework of mechanisms supporting the process of coproduction in T1DM research with young people. Findings: The framework involving coproduction partners in research about young people with type 1 diabetes centres on the unique expertize that different team members bring to the research and describes conditions that enable expert contributions through the enactment of a variety of expert roles. The framework also describes outcomes—the impact of the expert contributions on both the research and the team members involved. Conclusion: The findings of this small exploratory study provide a sound foundation to develop further understanding about structures and processes that are integral for the success of coproduction research teams. The framework may provide a guide for researchers planning to incorporate coproduction, on elements that are important for this model of research to succeed. It may also inform coproduction impact assessment research and be used for hypothesis testing and expansion in future studies.
      pubtype: Academic Journal
      doctype:
        research
        tables/charts
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      ougenre: Article
    language: English
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