Tinkering as Collective Practice: A Qualitative Study on Handling Ethical Tensions in Supporting People with Intellectual or Psychiatric Disabilities.
The values of patient autonomy and community participation have become central in health care. However, care practices involve a plurality of possibly conflicting values. These values often transgress the borders of the individual professional–client relationship as they involve family members, othe...
| Publicado en: | Ethics & Social Welfare Vol. 16; no. 1; pp. 36 - 54 |
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| Autores principales: | , , , |
| Formato: | Artículo |
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Taylor & Francis Ltd
Mar 2022
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| Acceso en línea: | Ver este registro en EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ssf&AN=155317922&site=ehost-live header: @attributes: shortDbName: ssf uiTerm: 155317922 longDbName: Social Sciences Full Text (H.W. Wilson) uiTag: AN controlInfo: bkinfo: jinfo: jid: 17496535 30NM jtl: Ethics & Social Welfare issn: 17496535 maglogo: N pubinfo: dt: Mar 2022 vid: 16 iid: 1 pid: 377 pub: Taylor & Francis Ltd artinfo: ui: 155317922 10.1080/17496535.2021.1954223 ppf: 36 ppct: 18 formats: tig: atl: Tinkering as Collective Practice: A Qualitative Study on Handling Ethical Tensions in Supporting People with Intellectual or Psychiatric Disabilities. aug: au: Heerings, Marjolijn van de Bovenkamp, Hester Cardol, Mieke Bal, Roland affil: Erasmus School of Health Policy & Management, Erasmus University Rotterdam, Rotterdam, Netherlands Research Centre Innovations in Care, Rotterdam University of Applied Sciences, Rotterdam, Netherlands su: People with intellectual disabilities Services for people with disabilities Disabilities Community involvement Patient autonomy Community housing sug: subj: People with intellectual disabilities Services for people with disabilities Disabilities Community involvement Services for the Elderly and Persons with Disabilities Other Community Housing Services Community housing services Patient autonomy Community housing keyword: autonomy intellectual disability mental health recovery Patient relations psychiatric rehabilitation autonomy intellectual disability mental health recovery Patient relations psychiatric rehabilitation ab: The values of patient autonomy and community participation have become central in health care. However, care practices involve a plurality of possibly conflicting values. These values often transgress the borders of the individual professional–client relationship as they involve family members, other professionals and community organisations. Good care should acknowledge this relational complexity, which requires a collective handling of the tensions between values. To better understand this process, we draw on [Mol, A. 2008. The Logic of Care: Health and the Problem of Patient Choice. Routledge; Mol, A., I. Moser, and J. Pols. 2010a. Care in Practice: On Tinkering in Clinics, Homes and Farms. Transcript Verlag.) by developing the notion of collective tinkering. An ethnographic study was conducted in two teams in community housing services for people with Intellectual Disabilities and Severe Mental Illness. Collective tinkering is analysed (1) within teams; (2) between professionals, family members and professionals from different organisations providing care for the same client; and (3) in organising practices for a collective of clients. Collective tinkering involves assembling goods into a care practice, attentively experimenting with these care practices, and adjusting care accordingly within a collective of those involved in care for a particular client (group). When collective tinkering does not occur, the stakeholders excluded (e.g. clients or family members) may experience poor quality of care. pubtype: Academic Journal doctype: Article src: R language: English refInfo: copyright: @attributes: flag: N holdings: @attributes: islocal: N |
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