Digital surveillance in a pandemic response: What bioethics ought to learn from Indigenous perspectives.
Our paper interrogates the ethics of digital pandemic surveillance from Indigenous perspectives. The COVID‐19 pandemic has shown that Indigenous peoples are among the communities most negatively affected by pandemic infectious disease spread. Similarly to other racialized subpopulations, Indigenous...
| Publicado en: | Bioethics Vol. 36; no. 3; pp. 305 - 313 |
|---|---|
| Autores principales: | , |
| Formato: | Artículo |
| Publicado: |
Wiley-Blackwell
Mar2022
|
| Materias: | |
| Acceso en línea: | Ver este registro en EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ssf&AN=155730463&site=ehost-live header: @attributes: shortDbName: ssf uiTerm: 155730463 longDbName: Social Sciences Full Text (H.W. Wilson) uiTag: AN controlInfo: bkinfo: jinfo: jid: 02699702 6PJ jtl: Bioethics issn: 02699702 maglogo: Y pubinfo: dt: Mar2022 vid: 36 iid: 3 pid: 480 pub: Wiley-Blackwell artinfo: ui: 155730463 10.1111/bioe.13013 ppf: 305 ppct: 8 formats: tig: atl: Digital surveillance in a pandemic response: What bioethics ought to learn from Indigenous perspectives. aug: au: Hendl, Tereza Roxanne, Tiara affil: Institute of Ethics, History and Theory of Medicine, Ludwig Maximilians University, Munich, Germany Faculty of Medicine, University of Augsburg, Bayern, Germany Deutsche Zentrum für Integrations und Migrationsforschung, Berlin, Germany su: Public health surveillance Indigenous peoples Bioethics Social dominance COVID-19 pandemic Psychosocial factors Digital health Comorbidity sug: subj: Public health surveillance Indigenous peoples Bioethics Social dominance COVID-19 pandemic Psychosocial factors Research and Development in the Physical, Engineering, and Life Sciences (except Biotechnology) Digital health Comorbidity keyword: agency colonialism digital health technologies health justice Indigenous data sovereignty pandemic surveillance vulnerability agency colonialism digital health technologies health justice Indigenous data sovereignty pandemic surveillance vulnerability ab: Our paper interrogates the ethics of digital pandemic surveillance from Indigenous perspectives. The COVID‐19 pandemic has shown that Indigenous peoples are among the communities most negatively affected by pandemic infectious disease spread. Similarly to other racialized subpopulations, Indigenous people have faced strikingly high mortality rates from COVID‐19 owing to structural marginalization and related comorbidities, and these high rates have been exacerbated by past and present colonial dominance. At the same time, digital pandemic surveillance technologies, which have been promoted as effective tools for mitigating a pandemic, carry risks for Indigenous subpopulations that warrant an urgent and thorough investigation. Building on decolonial scholarship and debates about Indigenous data sovereignty, we argue that should Indigenous communities wish to implement digital pandemic surveillance, then they must have ownership over these technologies, including agency over their own health data, how data are collected and stored, and who will have access to the data. Ideally, these tools should be designed by Indigenous peoples themselves to ensure compatibility with Indigenous cultures, ethics and languages and the protection of Indigenous lives, health and wellbeing. pubtype: Academic Journal doctype: Article src: R language: English refInfo: copyright: @attributes: flag: N holdings: @attributes: islocal: N |
|---|