Bleeding Disorders in Women and Girls: State of the Science and CDC Collaborative Programs.

Women and girls with bleeding disorders experience abnormal and excessive bleeding that can negatively impact their overall health and quality of life. In this report, we provide an overview of the biology, types, clinical care, and state of the science related to bleeding disorders in girls and wom...

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Publicado en:Journal of Women's Health (15409996) Vol. 31; no. 3; pp. 301 - 310
Autores principales: Byams, Vanessa R., Miller, Connie H., Bethea, Fiona M., Abe, Karon, Bean, Christopher J., Schieve, Laura A.
Formato: review tables/charts Journal Article
Publicado: Mary Ann Liebert, Inc. Mar2022
Acceso en línea:Ver este registro en EBSCOhost
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      dt: Mar2022
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      pub: Mary Ann Liebert, Inc.
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        atl: Bleeding Disorders in Women and Girls: State of the Science and CDC Collaborative Programs.
      aug:
        au:
          Byams, Vanessa R.
          Miller, Connie H.
          Bethea, Fiona M.
          Abe, Karon
          Bean, Christopher J.
          Schieve, Laura A.
        affil: Division of Blood Disorders, National Center on Birth Defects and Developmental Disabilities, Centers for Disease Control and Prevention, Atlanta, Georgia, USA.
      sug:
        subj:
          Hemorrhage Epidemiology
          Blood Coagulation Disorders
          Women's Health Education
          Centers for Disease Control and Prevention (U.S.)
          Collaboration
          Program Implementation
          Menorrhagia Therapy
          Hemophilia Therapy
          Von Willebrand Disease
          Disease Surveillance
          Quality of Life
          Genitalia, Female Microbiology
          Menstruation Physiology
          Research, Medical
          Health Services Accessibility
          Health Promotion
          Public Health
          Health Knowledge
          Health Services Needs and Demand
          Outcomes (Health Care)
          Health Care Delivery
      ab: Women and girls with bleeding disorders experience abnormal and excessive bleeding that can negatively impact their overall health and quality of life. In this report, we provide an overview of the biology, types, clinical care, and state of the science related to bleeding disorders in girls and women and describe Centers for Disease Control and Prevention (CDC) activities related to (1) surveillance of bleeding disorders in women; (2) scientific review, research, and collaboration to inform health care gaps in identifying and caring for women with bleeding disorders; and (3) development of health promotion and education programs to bring awareness about bleeding disorders to both women and girls in the population at large and various health care providers who care for women. Findings generated from surveillance and research activities inform the development of new public health programs aimed at improving diagnostic and health care services and empowering women with bleeding disorders with the knowledge they need to navigate a complex health care system with the need for specialty care services. Additional work is needed to improve provider awareness and understanding of the unique needs of women and girls with bleeding disorders to achieve appropriate care and treatment and ensure optimal outcomes and quality of life.
      pubtype: Academic Journal
      doctype:
        review
        tables/charts
        Journal Article
      ougenre: Article
    language: English
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