Research data warehouse best practices: catalyzing national data sharing through informatics innovation.

Research Patient Data Repositories (RPDRs) have become essential infrastructure for traditional Clinical and Translational Science Award (CTSA) programs and increasingly for a wide range of research consortia[[1], [3]] and learning health system networks. In the data commons, datasets associated wit...

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Publicado en:Journal of the American Medical Informatics Association Vol. 29; no. 4; pp. 581 - 585
Autores principales: Murphy, Shawn N, Visweswaran, Shyam, Becich, Michael J, Campion, Thomas R, Knosp, Boyd M, Melton-Meaux, Genevieve B, Lenert, Leslie A
Formato: Journal Article
Publicado: Oxford University Press / USA Apr2022
Acceso en línea:Ver este registro en EBSCOhost
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        atl: Research data warehouse best practices: catalyzing national data sharing through informatics innovation.
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          Murphy, Shawn N
          Visweswaran, Shyam
          Becich, Michael J
          Campion, Thomas R
          Knosp, Boyd M
          Melton-Meaux, Genevieve B
          Lenert, Leslie A
        affil: Department of Neurology, Massachusetts General Hospital , Boston, Massachusetts, USA
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          Medical Informatics
          Communication
      ab: Research Patient Data Repositories (RPDRs) have become essential infrastructure for traditional Clinical and Translational Science Award (CTSA) programs and increasingly for a wide range of research consortia[[1], [3]] and learning health system networks. In the data commons, datasets associated with various research projects were made findable, accessible, interoperable, and reusable (FAIR) through the open-source Gen3 data platform that enables the interoperation and creation of cloud-based data resources. Compared to on-premises infrastructure, cloud storage is inexpensive and readily available with automatic backups, and secure analytics in the cloud are easily enabled on large datasets containing protected health information.
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      doctype: Journal Article
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    language: English
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