Can Genomics Remove Uncertainty from Adoption? Social Workers' and Medical Advisors' Accounts of Genetic Testing.
Genetic testing is controversial in adoption with professionals taking different positions on whether children should be protected from genetic information or whether it can be used to assist adoption. In this article, we argue that advances in 'genome-wide' testing add further complications to thes...
| Publicado en: | British Journal of Social Work Vol. 52; no. 2; pp. 719 - 738 |
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| Autores principales: | , , |
| Formato: | research Journal Article |
| Publicado: |
Oxford University Press / USA
Mar2022
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| Acceso en línea: | Ver este registro en EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ccm&AN=155892163&site=ehost-live header: @attributes: shortDbName: ccm uiTerm: 155892163 longDbName: CINAHL Complete uiTag: AN controlInfo: bkinfo: dissinfo: jinfo: jid: 00453102 BHO jtl: British Journal of Social Work issn: 00453102 maglogo: N pubinfo: dt: Mar2022 vid: 52 iid: 2 pid: 622 pub: Oxford University Press / USA artinfo: ui: 155892163 155892163 155892163 10.1093/bjsw/bcab017 155892163 ppf: 719 ppct: 19 formats: fmt: – @attributes: type: T – @attributes: type: P tig: atl: Can Genomics Remove Uncertainty from Adoption? Social Workers' and Medical Advisors' Accounts of Genetic Testing. aug: au: Arribas-Ayllon, Michael Shelton, Katherine Clarke, Angus affil: School of Social Sciences, Cardiff University , Cardiff, Wales, UK sug: subj: Genomics Genetic Screening Uncertainty Professional Knowledge Social Workers Health Personnel Human Pediatricians England Wales Ethics, Professional ab: Genetic testing is controversial in adoption with professionals taking different positions on whether children should be protected from genetic information or whether it can be used to assist adoption. In this article, we argue that advances in 'genome-wide' testing add further complications to these debates. Although next-generation sequencing (NGS) and microarray-based technologies can offer high-quality molecular diagnoses for a variety of conditions, they also increase the burden of interpretation. For these reasons, adoption professionals will need to understand the relevance and complexity of biomedical information. Our study explores the accounts of social workers' and medical advisors' knowledge and reasoning about genetic testing in adoption. Twenty participants, including social workers, managers, medical advisors and paediatricians, were recruited from adoption services in England and Wales. A key finding revealed that medical professionals reported increasing pressure to test children prior to adoption, whilst social workers justified testing on the basis that it reduced uncertainty and therefore assisted adoption. Professionals' accounts of genetic testing suggest that social workers may not be aware of the potential indeterminacy of microarray and NGS technologies. This has important implications for adoption because increases in genomic uncertainty can stigmatise children and disadvantage their prospects for adoption. pubtype: Academic Journal doctype: research Journal Article ougenre: Article language: English refInfo: holdings: @attributes: islocal: N |
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