How do people with neurofibromatosis type 1 (the forgotten victims) live? A grounded theory study.
Background: Neurofibromatosis type I (NF1) is a rare genetic disorder, associated with some physical symptoms including spots and tiny bumps on the skin, and internal organ involvement. People suffering from neurofibromatosis face various challenges in their daily lives. However, there is little und...
| Publicado en: | Health Expectations Vol. 25; no. 2; pp. 659 - 667 |
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| Autores principales: | , , , |
| Formato: | questions and answers research tables/charts Journal Article |
| Publicado: |
Wiley-Blackwell
Apr2022
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| Acceso en línea: | Ver este registro en EBSCOhost |