Barriers and Expectations for Patients in Post-Osteoporotic Fracture Care in France: The EFFEL Study.

Objectives: This study aimed to quantify the relative importance of barriers to better secondary prevention of osteoporotic fractures and of care expectations expressed by patients with osteoporotic fractures in France.Methods: A qualitative exploration of potential barriers to care and expectations...

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Publicado en:Value in Health Vol. 25; no. 4; pp. 571 - 582
Autores principales: Launois, Robert, Cabout, Elise, Benamouzig, Daniel, Velpry, Livia, Briot, Karine, Alliot, Françoise, Perrin, Laure, Grange, Laurent, Sellami, Rahma, Touboul, Chantal, Joubert, Jean-Michel, Roux, Christian
Formato: research Journal Article
Publicado: Elsevier B.V. Apr2022
Acceso en línea:Ver este registro en EBSCOhost
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      dt: Apr2022
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      pub: Elsevier B.V.
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        10.1016/j.jval.2021.10.005
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        atl: Barriers and Expectations for Patients in Post-Osteoporotic Fracture Care in France: The EFFEL Study.
      aug:
        au:
          Launois, Robert
          Cabout, Elise
          Benamouzig, Daniel
          Velpry, Livia
          Briot, Karine
          Alliot, Françoise
          Perrin, Laure
          Grange, Laurent
          Sellami, Rahma
          Touboul, Chantal
          Joubert, Jean-Michel
          Roux, Christian
        affil: Health Economic Assessment Network, Paris, France
      sug:
        subj:
          Osteoporosis Epidemiology
          Motivation
          Probability
          Ferrans and Powers Quality of Life Index
      ab: Objectives: This study aimed to quantify the relative importance of barriers to better secondary prevention of osteoporotic fractures and of care expectations expressed by patients with osteoporotic fractures in France.Methods: A qualitative exploration of potential barriers to care and expectations was undertaken through a systematic literature review and in-depth patients interviews. A list of 21 barriers and 21 expectations was identified. These were presented to 324 subjects with osteoporotic fractures, identified in a representative sample of the French population, in the form of best-worst scaling questionnaires. Patients rated the relative importance of the attributes, and arithmetic mean importance scores were calculated and ranked. A Bayesian hierarchical model was also performed to generate a relative importance score. Latent class analysis was performed to identify potential subgroups of patients with different response profiles.Results: A total of 7 barriers were rated as the most important, relating to awareness of osteoporosis and coordination of care. The highest-ranked barrier, "my fracture is not related to osteoporosis," was significantly more important than all the others (mean importance score 0.45; 95% confidence interval 0.33-0.56). A similar ranking of attributes was obtained with both the arithmetic and the Bayesian approach. For expectations, no clear hierarchy of attributes was identified. Latent class analysis discriminated 3 classes of respondents with significant differences in response profiles (the educated environmentalists, the unaware, and the victims of the system).Conclusions: Better quality of care of osteoporosis and effective secondary fracture prevention will require improvements in patient education, training of healthcare professionals, and coordination of care.
      pubtype: Academic Journal
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        Journal Article
      ougenre: Article
    language: English
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