Symptom management at the end of life for people with intellectual disabilities.
People with intellectual disabilities are living longer while experiencing significant health conditions often resulting in a prolonged period of dying. Symptom management may be complex at end of life and the unique needs of each individual necessitates a person-centred approach. This article discu...
| Publicado en: | Learning Disability Practice Vol. 25; no. 2; pp. 33 - 43 |
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| Autores principales: | , , |
| Formato: | Journal Article |
| Publicado: |
Royal College of Nursing of the United Kingdom (The)
4/7/2022
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| Acceso en línea: | Ver este registro en EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ccm&AN=156188358&site=ehost-live header: @attributes: shortDbName: ccm uiTerm: 156188358 longDbName: CINAHL Complete uiTag: AN controlInfo: bkinfo: dissinfo: jinfo: jid: 14658712 FTU jtl: Learning Disability Practice issn: 14658712 maglogo: N pubinfo: dt: 4/7/2022 vid: 25 iid: 2 pid: 6040 pub: Royal College of Nursing of the United Kingdom (The) artinfo: ui: 156188358 10.7748/ldp.2021.e2167 156188358 ppf: 33 ppct: 10 formats: tig: atl: Symptom management at the end of life for people with intellectual disabilities. aug: au: Egan, Caroline McDonald, Aisling Dalton, Caroline affil: Lecturer, Intellectual disability nursing, University College Cork, School of Nursing and Midwifery, Cork, Republic of Ireland sug: subj: Intellectual Disability Symptoms Nursing Care Palliative Care Terminally Ill Patients Pain Anxiety Symptoms Agitation Symptoms Epilepsy Symptoms Advance Care Planning Decision Making, Shared ab: People with intellectual disabilities are living longer while experiencing significant health conditions often resulting in a prolonged period of dying. Symptom management may be complex at end of life and the unique needs of each individual necessitates a person-centred approach. This article discusses several symptoms at end of life including pain, anxiety, agitation, breathlessness and epilepsy, as well as their management strategies, focusing on the last days of life. Healthcare professionals may support people with intellectual disabilities at end of life in a variety of hospital or community settings. Therefore, they need to have the knowledge and skills to provide evidence-based care safely and effectively. Contemporary approaches to ensuring that people with an intellectual disability can self-determine the management of their symptoms and that their circle of support is involved in a meaningful way will be explored, including advanced care planning and shared decision-making. This article presents a biopsychological perspective to end of life care and symptom management, which speaks to a holistic and respectful approach. pubtype: Academic Journal doctype: Journal Article ougenre: Article language: English refInfo: holdings: @attributes: islocal: N |
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