Experiences and disease self-management in individuals living with chronic kidney disease: qualitative analysis of the National Kidney Foundation's online community.
Background: Self-management of chronic kidney disease (CKD) is one of the keys in improving CKD outcomes and quality of life. There has been an increased use of online health communities to share the experiences of those living with CKD. By analyzing the CKD online forum data, this study aims to: 1)...
| Published in: | BMC Nephrology Vol. 23; no. 1; pp. 1 - 11 |
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| Main Authors: | , , , , , |
| Format: | Journal Article |
| Published: |
BioMed Central
3/4/2022
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| Online Access: | View this record in EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ccm&AN=156271991&site=ehost-live header: @attributes: shortDbName: ccm uiTerm: 156271991 longDbName: CINAHL Complete uiTag: AN controlInfo: bkinfo: dissinfo: jinfo: jid: 14712369 1CI6 jtl: BMC Nephrology issn: 14712369 maglogo: N pubinfo: dt: 3/4/2022 vid: 23 iid: 1 pid: 24147 pub: BioMed Central artinfo: ui: 156271991 156271991 NLM35246060 10.1186/s12882-022-02717-7 NLM35246060 156271991 ppf: 1 ppct: 10 formats: tig: atl: Experiences and disease self-management in individuals living with chronic kidney disease: qualitative analysis of the National Kidney Foundation's online community. aug: au: Du, Yan Dennis, Brittany Ramirez, Valerie Li, Chengdong Wang, Jing Meireles, Christiane L affil: Center on Smart and Connected Health Technology, School of Nursing, UT Health San Antonio, 7703 Floyd Curl Dr, 78229, San Antonio, TX, USA sug: subj: Renal Insufficiency, Chronic Therapy Renal Insufficiency, Chronic Epidemiology Quality of Life Psychosocial Factors Kidney Hemodialysis Female Male Scales Arthritis Impact Measurement Scales Ferrans and Powers Quality of Life Index Ways of Coping Questionnaire Female Male ab: Background: Self-management of chronic kidney disease (CKD) is one of the keys in improving CKD outcomes and quality of life. There has been an increased use of online health communities to share the experiences of those living with CKD. By analyzing the CKD online forum data, this study aims to: 1) understand the experiences and challenges of individuals living with CKD, and 2) explore how online communities may help CKD patients in improving CKD self-management.Methods: Publicly available posts of peer interactions on the National Kidney Foundation's online community for individuals affected by CKD were extracted in April 2021 using computer programming. A total of 20,436 posts were collected, of which 400 posts were analyzed using inductive thematic analysis, and saturation was reached. Two researchers coded each post independently, and discrepancies were discussed to reach consensus.Results: The analysis identified seven themes: 1) Dynamics of CKD status, 2) CKD comorbidities, 3) Managing CKD and symptoms, 4) Life participation and outlook; 5) Navigating healthcare and clinical needs, 6) Medical tests and results; and 7) Support on the forum. The results revealed that comorbidities were common in CKD patients and early-stage CKD was not communicated in a timely manner to patients by the health care community; living with CKD challenged both CKD and caregivers; some common challenges included but were not limited to the management of a diet for CKD and co-morbidities (especially co-morbid diabetes), CKD dynamics and symptoms, and fear of/ways to prevent progression. Individuals living with CKD primarily used the online forum to share and seek information and emotional support for managing CKD (including co-morbidities).Conclusions: Challenges of living with CKD were found not only in those with advanced kidney disease and those on dialysis, but also in those with early and middle stages. Information and emotional support from the online forum serve as a platform to empower CKD individuals with the knowledge, skills and confidence for CKD self-management. Proactive and innovative strategies with a combination of virtual and real settings to improve self-management for individuals with all-stage CKD needs to be explored and tailored. pubtype: Academic Journal doctype: Journal Article ougenre: Article language: English refInfo: holdings: @attributes: islocal: N |
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