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Healthcare Services During the Transitions to Adulthood Among Individuals with ASD Aged 15–25 Years Old: Stakeholders' Perspectives.

Although previous research has shown that the transition to adulthood may be challenging, there exists a lack of research regarding perspectives of stakeholders on the transition of individuals with Autism Spectrum Disorder (ASD). This study aimed to investigate stakeholders' experiences regarding h...

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Published in:Journal of Autism & Developmental Disorders Vol. 52; no. 6; pp. 2575 - 2589
Main Authors: Ghanouni, Parisa, Seaker, Liam
Format: research tables/charts Journal Article
Published: Springer Nature Jun2022
Online Access:View this record in EBSCOhost
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      dt: Jun2022
      vid: 52
      iid: 6
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      pub: Springer Nature
      place: New York, New York
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        10.1007/s10803-021-05159-6
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        atl: Healthcare Services During the Transitions to Adulthood Among Individuals with ASD Aged 15–25 Years Old: Stakeholders' Perspectives.
      aug:
        au:
          Ghanouni, Parisa
          Seaker, Liam
        affil: Department of Occupational Therapy, Dalhousie University, PO Box 15000, B3H 4R2, Halifax, NS, Canada
      sug:
        subj:
          Stakeholder Participation Psychosocial Factors
          Parents of Children with Disabilities Psychosocial Factors
          Health Personnel Psychosocial Factors
          Health Services for Persons with Disabilities
          Transitional Care
          Transition to Adulthood
          Autism Spectrum Disorder In Adolescence
          Autism Spectrum Disorder In Adulthood
          Human
          Adolescence
          Adult
          Parental Attitudes
          Attitude of Health Personnel
          Thematic Analysis
          Health Services Accessibility
          Quality of Health Care
          Conflict (Psychology)
          Stress, Psychological
          Patient Navigation
          Health Care Delivery, Integrated
          Adolescent: 13-18 years
          Adult: 19-44 years
      ab: Although previous research has shown that the transition to adulthood may be challenging, there exists a lack of research regarding perspectives of stakeholders on the transition of individuals with Autism Spectrum Disorder (ASD). This study aimed to investigate stakeholders' experiences regarding healthcare services for youth with ASD during their transition. We involved 20 stakeholders, including 17 parents of youth with ASD as well as 3 services providers. The study yielded three major themes including: (a) accessibility and quality of care; (b) tensions and conflicts; and (c) navigation and integrated care. The findings can be used to direct change within the healthcare services towards better practices for youth with ASD and increasing the likelihood of positive health outcomes.
      pubtype: Academic Journal
      doctype:
        research
        tables/charts
        Journal Article
      ougenre: Article
    language: English
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