Daily Life and Challenges Faced By Households With Permanent Childhood Developmental Disability in Rural Tanzania – A Qualitative Study.
Severe developmental disability in children affects the life of the child and entire household. We conducted a qualitative study to understand how caregivers manage severe developmental disabilities in children in rural Africa. Families and six children (out of 15 children) who had serious permanent...
| Publicado en: | Journal of Developmental & Physical Disabilities Vol. 34; no. 3; pp. 471 - 491 |
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| Autores principales: | , , , , , , , , , , , |
| Formato: | research tables/charts Journal Article |
| Publicado: |
Springer Nature
Jun2022
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| Acceso en línea: | Ver este registro en EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ccm&AN=156935471&site=ehost-live header: @attributes: shortDbName: ccm uiTerm: 156935471 longDbName: CINAHL Complete uiTag: AN controlInfo: bkinfo: dissinfo: jinfo: jid: 1056263X JDP jtl: Journal of Developmental & Physical Disabilities issn: 1056263X maglogo: N pubinfo: dt: Jun2022 vid: 34 iid: 3 pid: 237 pub: Springer Nature place: New York, New York artinfo: ui: 156935471 152736557 156935471 156935471 10.1007/s10882-021-09809-6 156935471 ppf: 471 ppct: 20 formats: tig: atl: Daily Life and Challenges Faced By Households With Permanent Childhood Developmental Disability in Rural Tanzania – A Qualitative Study. aug: au: Castellani, Joëlle Kimbute, Omari Makasi, Charles Mrango, Zakayo E. Paulus, Aggie T. G. Evers, Silvia M. A. A. Hardy, Pip Sumner, Tony Keiya, Augusta Mihaylova, Borislava Faiz, Mohammad Abul Gomes, Melba affil: Department of Health Services Research, Care and Public Health Research Institute (CAPHRI), Maastricht University, Maastricht, The Netherlands sug: subj: Child Development Disorders Psychosocial Factors Developmental Disabilities Psychosocial Factors Rural Areas Tanzania Life Experiences Poverty Caregiver Attitudes Human Tanzania Qualitative Studies Family Child Semi-Structured Interview Consent (Research) Autonomy Financial Stress Stress, Psychological Child: 6-12 years ab: Severe developmental disability in children affects the life of the child and entire household. We conducted a qualitative study to understand how caregivers manage severe developmental disabilities in children in rural Africa. Families and six children (out of 15 children) who had serious permanent sequelae from a cerebral infection in Handeni, Tanzania, were contacted and invited to a workshop to recount their experience living with severe developmental disabilities. After consent, individual interviews were conducted first through recording of individual digital stories and then through individual semi-structured interviews. Pre-determined key categories were used to analyse the data. Our results showed that developmental disabilities required constant care and reduced the autonomy of the children. Schooling had not been attempted or was halted because of learning problems or inability to meet specialized school costs. Parents were under constant physical, emotional and financial stress. Their occupational earnings decreased. Some families sold their assets to survive. Others began to rely on relatives. Understanding the consequences of developmental disability helps to identify where social support should be focused and improved. pubtype: Academic Journal doctype: research tables/charts Journal Article ougenre: Article language: English refInfo: holdings: @attributes: islocal: N |
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