Mild matters: parental insights into the conundrums of managing mild congenital hearing loss.

To explore and describe parental experiences related to the management of mild bilateral congenital hearing loss in children. Using qualitative methods, we conducted semi-structured interviews with parents/caregivers until saturation of themes was achieved. We analysed transcripts using inductive co...

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Publicado en:International Journal of Audiology Vol. 61; no. 6; pp. 500 - 507
Autores principales: Lin, Jing Jing, Gillam, Lynn, Smith, Libby, Carew, Peter, King, Alison, Ching, Teresa Y. C., Sung, Valerie
Formato: research tables/charts Journal Article
Publicado: Taylor & Francis Ltd Jun2022
Acceso en línea:Ver este registro en EBSCOhost
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      dt: Jun2022
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      pub: Taylor & Francis Ltd
      place: Philadelphia, Pennsylvania
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        10.1080/14992027.2021.1954248
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        atl: Mild matters: parental insights into the conundrums of managing mild congenital hearing loss.
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        au:
          Lin, Jing Jing
          Gillam, Lynn
          Smith, Libby
          Carew, Peter
          King, Alison
          Ching, Teresa Y. C.
          Sung, Valerie
        affil: The Royal Children's Hospital, Melbourne, Australia
      sug:
        subj:
          Hearing Disorders Familial and Genetic
          Parental Attitudes Evaluation
          Disease Management
          Caregivers Psychosocial Factors
          Hearing Aids
          Human
          Australia
          Female
          Male
          Child
          Qualitative Studies
          Semi-Structured Interview
          Clinical Assessment Tools
          Parents Psychosocial Factors
          Questionnaires
          Sample Size Determination
          Interview Guides
          Field Notes
          Pain
          Content Analysis
          Descriptive Statistics
          Funding Source
          Child: 6-12 years
          Female
          Male
      ab: To explore and describe parental experiences related to the management of mild bilateral congenital hearing loss in children. Using qualitative methods, we conducted semi-structured interviews with parents/caregivers until saturation of themes was achieved. We analysed transcripts using inductive content analysis. Caregivers of children under 3-years-old with mild bilateral sensorineural hearing loss. We interviewed 12 parents. Parental perception of advice regarding hearing aid fitting was varied; almost all children were offered hearing aids. Perceived positives related to hearing aids: feeling empowered that action has been taken; improvements in the child's hearing perception and; facilitation of behavioural management. Perceived negatives of hearing aid use: difficulties with compliance resulting in parental frustration and guilt, damage/loss of equipment, discomfort, parental discord, altered quality of natural sound and potential bullying/stigma. Some parents were ambivalent about the effect of the hearing aids. Where hearing aids were offered and not fitted, there was significant ongoing uncertainty, and the family carried the burden of their decision. There was a wide variation in perceived advice regarding early hearing aid fitting in children with mild bilateral hearing loss. We identified parental perceptions of positive/negative impacts of hearing aid fitting and potential perceived harms from not fitting.
      pubtype: Academic Journal
      doctype:
        research
        tables/charts
        Journal Article
      ougenre: Article
    language: English
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