Mothers' experiences of giving medicines to children with severe and profound intellectual disabilities—The impact on time.
Background: Chronic health conditions experienced by children with severe and profound intellectual disabilities are accompanied by numerous challenges because of the prolonged period over which children take medication and the large number of drugs they take. Mothers experience many challenges in g...
| Publicado en: | Child: Care, Health & Development Vol. 48; no. 4; pp. 558 - 569 |
|---|---|
| Formato: | research tables/charts Journal Article |
| Publicado: |
Wiley-Blackwell
Jul2022
|
| Acceso en línea: | Ver este registro en EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ccm&AN=157443506&site=ehost-live header: @attributes: shortDbName: ccm uiTerm: 157443506 longDbName: CINAHL Complete uiTag: AN controlInfo: bkinfo: dissinfo: jinfo: jid: 03051862 6NX jtl: Child: Care, Health & Development issn: 03051862 maglogo: Y pubinfo: dt: Jul2022 vid: 48 iid: 4 pid: 480 pub: Wiley-Blackwell place: Malden, Massachusetts artinfo: ui: 157443506 154850781 157443506 157443506 10.1111/cch.12960 157443506 ppf: 558 ppct: 11 formats: fmt: – @attributes: type: T – @attributes: type: C – @attributes: type: P tig: atl: Mothers' experiences of giving medicines to children with severe and profound intellectual disabilities—The impact on time. aug: sug: subj: Mothers Psychosocial Factors Mother-Child Relations Severity of Illness Intellectual Disability Drugs, Prescription Administration and Dosage Life Experiences Human Phenomenological Research Semi-Structured Interview Thematic Analysis Time Factors Caregivers ab: Background: Chronic health conditions experienced by children with severe and profound intellectual disabilities are accompanied by numerous challenges because of the prolonged period over which children take medication and the large number of drugs they take. Mothers experience many challenges in giving medicines, from difficulties in physical administration to manipulation of medication, covert administration and alternative formulations. The aim of this study was to explore mothers' lived experience of giving medicines to children with severe and profound intellectual disabilities. Methods: A hermeneutic phenomenological approach was used. Semistructured face‐to‐face interviews and participant diaries were adopted for data collection, resulting in 28 interviews undertaken and 7 diaries completed with mothers of children with severe and profound intellectual disabilities. Van Manen's method for thematic analysis was used for data analysis. Results: The concept of time and the impact of giving medicines were apparent, mothers being 'always on call' and the constant full‐time pace of their caring role evident. There was little spontaneity in their lives, dampened by the routine of giving medicines and their caregiving role. The necessity to be prepared and organized was highlighted as important in ensuring children got their medications on time and safely. Conclusions: This study provides insight into the phenomenon of mothers' lived experience of giving medicines to children with severe and profound intellectual disabilities. It has enabled exploration and familiarity with the lifeworld of mothers and offers meaning on the phenomena of giving medicines. It was concluded that this experience is a relentless and challenging one, yet appears invisible as an element of care in professional discourse. Through addressing the gap in understanding and exploring the meaning of this phenomenon, it may be useful in developing care for mothers and children with severe and profound intellectual disabilities. pubtype: Academic Journal doctype: research tables/charts Journal Article ougenre: Article language: English refInfo: holdings: @attributes: islocal: N |
|---|