Play‐based groups for children with cerebral palsy and their parents: A qualitative interview study about the impact on mothers' well‐being.

Background: Cerebral palsy (CP) is the most common childhood physical disability in developed countries. Parents of children with CP experience difficulties that can result in reduced well‐being. Health professionals supporting children with CP have been encouraged to focus on parental well‐being as...

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Publicado en:Child: Care, Health & Development Vol. 48; no. 4; pp. 578 - 588
Autores principales: Prest, Kirsten R., Borek, Aleksandra J., Boylan, Anne‐Marie R.
Formato: research tables/charts Journal Article
Publicado: Wiley-Blackwell Jul2022
Acceso en línea:Ver este registro en EBSCOhost
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      dt: Jul2022
      vid: 48
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      pub: Wiley-Blackwell
      place: Malden, Massachusetts
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        atl: Play‐based groups for children with cerebral palsy and their parents: A qualitative interview study about the impact on mothers' well‐being.
      aug:
        au:
          Prest, Kirsten R.
          Borek, Aleksandra J.
          Boylan, Anne‐Marie R.
        affil: Nuffield Department of Primary Care Health Sciences, University of Oxford, Oxford, UK
      sug:
        subj:
          Cerebral Palsy In Infancy and Childhood
          Play and Playthings In Infancy and Childhood
          Mothers Psychosocial Factors
          Psychological Well-Being
          Play Therapy
          Parents of Children with Disabilities Psychosocial Factors
          Qualitative Studies
          Interviews
          Support, Social
          Parents Psychosocial Factors
          Parental Attitudes
          Semi-Structured Interview
          Audiorecording
          Population Characteristics
          Thematic Analysis
          Health Services Needs and Demand
          Human
          Male
          Female
          Child
          Child, Preschool
          Descriptive Statistics
          Child: 6-12 years
          Child, Preschool: 2-5 years
          Male
          Female
      ab: Background: Cerebral palsy (CP) is the most common childhood physical disability in developed countries. Parents of children with CP experience difficulties that can result in reduced well‐being. Health professionals supporting children with CP have been encouraged to focus on parental well‐being as this forms part of the child's essential environment. There is a lack of evidence about interventions that holistically support the whole family by providing therapeutic input for the child and support for parents. This study aimed to explore parents' experiences of play‐based groups for children with CP and their parents, with a focus on the groups' impact on parents' well‐being. Methods: Parents of children with CP who had attended play‐based groups in the year prior were recruited for this qualitative study. Semi‐structured interviews were conducted, audio‐recorded and transcribed verbatim. Participants' demographic characteristics were collected as contextual information. Data were analysed using an inductive thematic approach. Results: Ten mothers were interviewed. Overall, mothers had positive experiences of the groups and perceived them as an important influence on their well‐being. Four themes described mothers' experiences of the groups and the subsequent impact on their well‐being: (1) practical support, (2) connecting with others, (3) transitioning journeys and (4) different motivators, different experiences. Numerous factors influenced mothers' experiences of attending the groups and the subsequent impact on their well‐being. This included mothers' individual experiences of having a child with CP. Conclusions: Interventions combining practical and social support for the whole family can have a positive impact on the well‐being of mothers of children with CP. Care should be taken to provide individualised support for each family. There is no 'one‐size‐fits‐all' approach, and a package of care can provide multiple services that meet the varying needs of mothers and their children with CP.
      pubtype: Academic Journal
      doctype:
        research
        tables/charts
        Journal Article
      ougenre: Article
    language: English
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