Engaging People With Lived Experience of Dementia in Research: Perspectives From a Multi-disciplinary Research Network.
Background Patient and public involvement/engagement in research on dementia is not new, but it is becoming increasingly common. The objective of this study was to describe researchers' knowledge, attitudes, and activities related to engaging people with lived experience of dementia in research, and...
| Published in: | Canadian Geriatrics Journal Vol. 25; no. 3; pp. 254 - 262 |
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| Main Authors: | , , , , , |
| Format: | research tables/charts Journal Article |
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Canadian Geriatrics Society
Sep2022
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| Online Access: | View this record in EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ccm&AN=158936326&site=ehost-live header: @attributes: shortDbName: ccm uiTerm: 158936326 longDbName: CINAHL Complete uiTag: AN controlInfo: bkinfo: dissinfo: jinfo: jid: 19258348 EV2Z jtl: Canadian Geriatrics Journal issn: 19258348 maglogo: N pubinfo: dt: Sep2022 vid: 25 iid: 3 pid: 76420 pub: Canadian Geriatrics Society place: Markham, Ontario artinfo: ui: 158936326 158936326 158936326 10.5770/cgj.25.583 158936326 ppf: 254 ppct: 8 formats: fmt: @attributes: type: P tig: atl: Engaging People With Lived Experience of Dementia in Research: Perspectives From a Multi-disciplinary Research Network. aug: au: Bechard, Lauren E. McGilton, Katherine S. Middleton, Laura E. Chertkow, Howard Sivananthan, Saskia Bethell, Jennifer affil: Canadian Consortium on Neurodegeneration in Aging sug: subj: Dementia Research, Medical Dementia Patients Research Subject Recruitment Research Personnel Professional Knowledge Evaluation Attitude of Health Personnel Evaluation Human Research, Interdisciplinary Surveys Research Methodology ab: Background Patient and public involvement/engagement in research on dementia is not new, but it is becoming increasingly common. The objective of this study was to describe researchers' knowledge, attitudes, and activities related to engaging people with lived experience of dementia in research, and how these differ by research theme. Methods Data were from an online, anonymous survey of researchers within the Canadian Consortium on Neurodegeneration in Aging. Results Of the 84 researchers who completed the survey (response rate: 27%), 89% agreed they understood the meaning of engaging people with lived experience in research, although this was lower among biomedical researchers. Almost all (93%) agreed that people with lived experience could con- tribute meaningfully to research, and nearly two-thirds were already incorporating engagement in their research. Some engagement practices reported differed by research theme. Irrespective of the type of research they conduct, researchers were most often motivated by improving the relevance and quality of their research. Conclusions These findings support an optimistic outlook for engaging people with lived experience of dementia in research, but identify differences across research themes. Understanding approaches to incorporate, evaluate, and adapt engagement activities across research disciplines are needed to enable researchers, as well as others involved in research, to develop and target strategies for patient and public involvement/engagement in research on dementia. pubtype: Academic Journal doctype: research tables/charts Journal Article ougenre: Article language: English refInfo: holdings: @attributes: islocal: N |
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