Attitudes Toward Payment for Research Participation: Results from a U.S. Survey of People Living with HIV.

Little is known about how payment affects individuals' decisions to participate in HIV research. Using data from a U.S. survey of people living with HIV (N = 292), we examined potential research participants' attitudes toward payment, perceived study risk based on payment amount, and preferred payme...

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Publicado en:AIDS & Behavior Vol. 26; no. 10; pp. 3267 - 3279
Autores principales: Polonijo, Andrea N., Dubé, Karine, Galea, Jerome T., Greene, Karah Yeona, Taylor, Jeff, Christensen, Christopher, Brown, Brandon
Formato: research tables/charts Journal Article
Publicado: Springer Nature Oct2022
Acceso en línea:Ver este registro en EBSCOhost
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      dt: Oct2022
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      pub: Springer Nature
      place: New York, New York
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        10.1007/s10461-022-03660-2
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        atl: Attitudes Toward Payment for Research Participation: Results from a U.S. Survey of People Living with HIV.
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          Polonijo, Andrea N.
          Dubé, Karine
          Galea, Jerome T.
          Greene, Karah Yeona
          Taylor, Jeff
          Christensen, Christopher
          Brown, Brandon
        affil: Department of Sociology and the Health Sciences Research Institute, University of California, Merced, 5200 North Lake Road, 95343, Merced, CA, USA
      sug:
        subj:
          HIV-Positive Persons United States
          Research Subjects Economics
          Research Ethics
          Consumer Attitudes
          Human
          United States
          Surveys
          Sociodemographic Factors
          Decision Making
          Male
          Female
          Sex Factors
          Educational Status
          Ethnic Groups
          Race Factors
          Geographic Factors
          Male
          Female
      ab:
        Little is known about how payment affects individuals' decisions to participate in HIV research. Using data from a U.S. survey of people living with HIV (N = 292), we examined potential research participants' attitudes toward payment, perceived study risk based on payment amount, and preferred payment forms, and how these factors vary by sociodemographic characteristics. Most respondents agreed people should be paid for HIV research participation (96%) and said payment would shape their research participation decisions (80%). Men, less formally educated individuals, and members of some minoritized racial-ethnic groups were less likely to be willing to participate in research without payment. Higher payment was associated with higher perceived study risks, while preferences for form of payment varied by age, gender, education, race-ethnicity, and census region of residence. Findings suggest payment may influence prospective research participants' risk–benefit calculus and participation, and that a one-size-fits-all approach to payment could differentially influence participation among distinct sociodemographic groups.
        Resumen: Se sabe poco acerca de cómo el pago afecta a la decisión de participar en investigaciones sobre VIH. Utilizando data de una encuesta de Estados Unidos sobre personas viviendo con VIH (N = 292), se examinó la actitud de potenciales participantes de investigación acerca del pago, el riesgo de estudio percibido basado en la cantidad del pago, las formas de pago preferidas y cómo estos factores varían según las características sociodemográficas. La mayoría de los que respondieron la encuesta estuvieron de acuerdo en que las personas debían recibir un pago por participar en una investigación sobre VIH (96%) y dijeron que el pago podría moldear su decisión de participar en la investigación (80%). Los hombres, individuos con menor educación formal y los miembros de algún grupo racial-étnico minoritario se mostraron menos propensos a participar en una investigación sin recibir pago. Se asoció un pago más alto con una mayor percepción de riesgos en el estudio, mientras que las preferencias por las formas de pago variaron según la edad, el género, la educación, la raza-etnicidad y la región. Los resultados sugirieron que el pago podría influir en el cálculo del riesgo-beneficio y en la participación de los potenciales participantes en una investigación prospectiva, y que un enfoque único para el pago podría influir de manera diferencial entre los distintos grupos sociodemográficos en lo que respecta a su participación.
      pubtype: Academic Journal
      doctype:
        research
        tables/charts
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      ougenre: Article
    language: English
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