Perception of clinical research among patients and healthy volunteers of clinical trials.

Purpose: Clinical research relies on data from patients and volunteers, yet the target sample size is often not achieved. Here, we assessed the perception of clinical research among clinical trial participants to improve the recruitment process for future studies. Methods: We conducted a single-cent...

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Publicado en:European Journal of Clinical Pharmacology Vol. 78; no. 10; pp. 1647 - 1656
Autores principales: Bergmann, Felix, Matzneller, Peter, Weber, Maria, Yeghiazaryan, Lusine, Fuereder, Thorsten, Weber, Thomas, Zeitlinger, Markus
Formato: research tables/charts Journal Article
Publicado: Springer Nature Oct2022
Acceso en línea:Ver este registro en EBSCOhost
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      dt: Oct2022
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      pub: Springer Nature
      place: New York, New York
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        10.1007/s00228-022-03366-3
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        atl: Perception of clinical research among patients and healthy volunteers of clinical trials.
      aug:
        au:
          Bergmann, Felix
          Matzneller, Peter
          Weber, Maria
          Yeghiazaryan, Lusine
          Fuereder, Thorsten
          Weber, Thomas
          Zeitlinger, Markus
        affil: Department of Clinical Pharmacology, Medical University of Vienna, Währinger Gürtel 18-20, 1090, Vienna, Austria
      sug:
        subj:
          Clinical Research
          Patient Attitudes
          Volunteer Workers Psychosocial Factors
          Clinical Trials
          Research Subject Recruitment
          Human
          Descriptive Research
          Exploratory Research
          Questionnaires
          Pharmaceutical Companies
          Descriptive Statistics
          Insurance, Health
      ab: Purpose: Clinical research relies on data from patients and volunteers, yet the target sample size is often not achieved. Here, we assessed the perception of clinical research among clinical trial participants to improve the recruitment process for future studies. Methods: We conducted a single-center descriptive and exploratory study of 300 current or former participants in various phase I–III clinical trials. Questionnaires were either distributed to current clinical trial participants or emailed to former subjects. Results: Subjects strongly agreed or agreed that contributing to improving medical care (> 81%), contributing to scientific research (> 79%), and trusting their treating physicians (> 77%) were motives for study participation. Among healthy volunteers, financial motives positively correlated with the number of clinical trials they had participated in (p < 0.05). Higher age positively correlated with expectation of best available treatment during study participation among patients (p < 0.05). Less than 8% of all subjects expressed "great concern" about the potential risks of sharing their personal information as part of the study. Subjects displayed "great trust" or "trust" in medical staff (86.6%) and in government research institutions (76.4%), and "very little trust" or "little trust" in pharmaceutical companies (35.4%) and health insurance companies (16.9%). Conclusion: Altruistic motives and trust in treating physicians were predominant motives for clinical trial participation. Older patients expected to receive the best available treatment during participation. Healthy volunteers who reported financial motives had participated in more clinical trials. Consistent with great trust in medical staff and government research institutions, little concern was expressed about the misuse of personal data during the trial.
      pubtype: Academic Journal
      doctype:
        research
        tables/charts
        Journal Article
      ougenre: Article
    language: English
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