Mindfulness-based interventions for people with multiple sclerosis: a systematic review and meta-aggregation of qualitative research studies.

Mindfulness-based interventions (MBIs) are effective treatments for stress, anxiety, and depression in PwMS. However, low adherence and high attrition may limit effectiveness. Qualitative research can provide important insights into MBI acceptability, accessibility, and implementation. This systemat...

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Publicado en:Disability & Rehabilitation Vol. 44; no. 21; pp. 6179 - 6194
Autores principales: Simpson, Robert, Simpson, Sharon, Wasilewski, Marina, Mercer, Stewart, Lawrence, Maggie
Formato: research systematic review tables/charts Journal Article
Publicado: Taylor & Francis Ltd Oct2022
Acceso en línea:Ver este registro en EBSCOhost
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      dt: Oct2022
      vid: 44
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      pub: Taylor & Francis Ltd
      place: Philadelphia, Pennsylvania
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        10.1080/09638288.2021.1964622
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        atl: Mindfulness-based interventions for people with multiple sclerosis: a systematic review and meta-aggregation of qualitative research studies.
      aug:
        au:
          Simpson, Robert
          Simpson, Sharon
          Wasilewski, Marina
          Mercer, Stewart
          Lawrence, Maggie
        affil: Division of Physical Medicine and Rehabilitation, Faculty of Medicine, University of Toronto, Canada
      sug:
        subj:
          Multiple Sclerosis Therapy
          Psychosocial Intervention Methods
          Mindfulness Methods
          Human
          Systematic Review
          AMED Database
          Cochrane Library
          Embase
          Medline
          Psycinfo
          Thematic Analysis
      ab: Mindfulness-based interventions (MBIs) are effective treatments for stress, anxiety, and depression in PwMS. However, low adherence and high attrition may limit effectiveness. Qualitative research can provide important insights into MBI acceptability, accessibility, and implementation. This systematic review and meta-aggregation evaluated qualitative research findings on the use of MBIs for PwMS. Systematic searches were undertaken in six major electronic databases. Studies using qualitative or mixed methods were included. Two reviewers screened, data extracted, and critically appraised studies. Meta-aggregation was performed following the Joanna Briggs Institute approach, extracting findings, developing categories, and synthesizing findings. Six eligible papers, including 136 PwMS were included in meta-aggregation. 136 findings were extracted, grouped into 17 categories, with four synthesized findings: (1) "accessing mindfulness," (2) "a sense of belonging," (3) "experiencing mindfulness," and (4) "making mindfulness more relevant and sustainable for PwMS." MBIs for PwMS need to take into consideration disability which can limit accessibility. Online MBIs (synchronous and asynchronous) appear acceptable alternatives to traditional face-to-face courses. However, PwMS benefit from shared (mindful) experiencing and highlight MBI instructors as crucial in helping them understand and practice mindfulness. Involving PwMS in design, delivery, and iterative refinement would make MBIs more relevant to those taking part. Both face-to-face and online Mindfulness-based interventions (MBIs) appear acceptable to PwMS and, ideally, people should be offered a choice in training modality. PwMS derive benefit from undertaking MBIs with their peers, where a sense of camaraderie and belonging develop through shared (mindful) experiences. Instructors delivering MBIs for PwMS should be knowledgeable about the condition; participants describe how the instructor has a key role in helping them practice mindfulness effectively in the context of unpleasant experiences associated with MS. MBIs tailored for PwMS should include a pre-course orientation session, clearly articulate how mindfulness practices can help with MS, provide well-organized course materials in large font size, and deliver individual mindfulness practices flexibly depending on participant need.
      pubtype: Academic Journal
      doctype:
        research
        systematic review
        tables/charts
        Journal Article
      ougenre: Article
    language: English
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