Nurse-led eHealth transition care program for adolescents with spina bifida: A feasibility and acceptability study.

This study aimed to evaluate the feasibility and acceptability of a nurse-led eHealth transition care program for adolescents with spina bifida. This study used a single-arm, pretest-posttest intervention study. Adolescents with spina bifida, aged 12–15 years, and their parents participated in the p...

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Published in:Journal of Pediatric Nursing Vol. 67; pp. 44 - 52
Main Authors: Choi, Eun Kyoung, Bae, Eunjeong, Yun, Hyeseon
Format: research Journal Article
Published: W B Saunders Nov2022
Online Access:View this record in EBSCOhost
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        08825963
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      jtl: Journal of Pediatric Nursing
      issn: 08825963
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      dt: Nov2022
      vid: 67
      pid: 1351
      pub: W B Saunders
      place: Philadelphia, Pennsylvania
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        160583266
        160583266
        160583266
        10.1016/j.pedn.2022.07.004
        160583266
      ppf: 44
      ppct: 8
      formats:
      tig:
        atl: Nurse-led eHealth transition care program for adolescents with spina bifida: A feasibility and acceptability study.
      aug:
        au:
          Choi, Eun Kyoung
          Bae, Eunjeong
          Yun, Hyeseon
        affil: College of Nursing and Mo-Im Kim Nursing Research Institute, Yonsei University, Seoul, Republic of Korea
      sug:
        subj:
          Spina Bifida In Adolescence
          Transitional Care In Adolescence
          Telenursing
          Nursing Interventions
          Program Evaluation
          Human
          Child
          Adolescence
          Pilot Studies
          Pretest-Posttest Design
          Parents
          Support, Social
          Sexuality
          Health Knowledge
          Worry
          Adolescent Behavior
          Career Planning and Development
          Descriptive Statistics
          Counseling
          COVID-19 Pandemic
          Child: 6-12 years
          Adolescent: 13-18 years
      ab: This study aimed to evaluate the feasibility and acceptability of a nurse-led eHealth transition care program for adolescents with spina bifida. This study used a single-arm, pretest-posttest intervention study. Adolescents with spina bifida, aged 12–15 years, and their parents participated in the program. A 6-week program was delivered through an online platform in real-time by nurses. We evaluated feasibility and acceptability using criteria such as the completion rate, program satisfaction, changes in transition readiness, social support, career preparation behavior, sexual knowledge, and sexual worries at three time points from July to September 2021. Thirteen adolescents completed all sessions and surveys (13/14, 92.9%). All adolescents expressed high satisfaction with both the content and delivery methods of the program. Significant benefits in transition readiness, career preparation behavior, and sexual knowledge were identified over the study period. However, the evaluation of social support and sexual worries did not demonstrate any significant improvements. Additionally, through family counseling, adolescents benefited from experiences such as reflecting on their current transition readiness, setting and achieving individualized goals and plans using a self-checklist with their parents and nursing professionals. This nurse-led eHealth intervention was feasible and acceptable for adolescents with spina bifida. Furthermore, our results highlight the practicability and the potential for strategic dissemination of using this eHealth program in transitional care during the COVID-19 pandemic. The eHealth transition care program contributes to broadening existing nursing interventions not only in medical areas but also in daily life areas. • Spina bifida transition programs should be tailored to developmental stage and need. • These transition programs benefit health self-management and future preparation. • Adolescents are motivated when they are taught importance of transition. • An individualized approach involving parents can facilitate transition readiness. • Nurse-led eHealth interventions are feasible and acceptable during COVID-19.
      pubtype: Academic Journal
      doctype:
        research
        Journal Article
      ougenre: Article
    language: English
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