Perceive, Recall, Plan and Perform (PRPP)-Assessment Based on Parent-Provided Videos of Children with Mitochondrial Disorder: Action Design Research on Implementation Challenges.
Performing the Perceive, Recall, Plan and Perform (PRPP)-Assessment, using video material of everyday life, seems sensible to lower the patient burden, enhance ecological validity, and provide care at a distance. However, receipt of adequate video material is not self-evident and assessing videos ca...
| Publicado en: | Physical & Occupational Therapy in Pediatrics Vol. 43; no. 1; pp. 74 - 93 |
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| Autores principales: | , , , , , |
| Formato: | research tables/charts Journal Article |
| Publicado: |
Taylor & Francis Ltd
2023
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| Acceso en línea: | Ver este registro en EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ccm&AN=160676394&site=ehost-live header: @attributes: shortDbName: ccm uiTerm: 160676394 longDbName: CINAHL Complete uiTag: AN controlInfo: bkinfo: dissinfo: jinfo: jid: 01942638 PTP jtl: Physical & Occupational Therapy in Pediatrics issn: 01942638 maglogo: N pubinfo: dt: 2023 vid: 43 iid: 1 pid: 377 pub: Taylor & Francis Ltd place: Philadelphia, Pennsylvania artinfo: ui: 160676394 157384505 160676394 160676394 10.1080/01942638.2022.2086024 160676394 ppf: 74 ppct: 19 formats: tig: atl: Perceive, Recall, Plan and Perform (PRPP)-Assessment Based on Parent-Provided Videos of Children with Mitochondrial Disorder: Action Design Research on Implementation Challenges. aug: au: Lindenschot, Marieke Groot, Imelda J.M.de Nijhuis-van der Sanden, Maria W.G. Steultjens, Esther M.J. Graff, Maud J.L. Koene, Saskia affil: Department of IQ Healthcare, Radboud Institute for Health Sciences, Nijmegen, The Netherlands sug: subj: Mitochondrial Diseases In Infancy and Childhood Cognition Mental Processes Task Performance and Analysis Videorecording Human Female Male Child Action Research Job Performance Activities of Daily Living Semi-Structured Interview Focus Groups Questionnaires Parents Consent (Research) Privacy and Confidentiality Legislation and Jurisprudence Thematic Analysis Descriptive Statistics Child: 6-12 years Female Male ab: Performing the Perceive, Recall, Plan and Perform (PRPP)-Assessment, using video material of everyday life, seems sensible to lower the patient burden, enhance ecological validity, and provide care at a distance. However, receipt of adequate video material is not self-evident and assessing videos can be challenging. Therefore, this study aims to optimize the process of gaining video material and to optimize the PRPP-Assessment based on parent-provided videos. An action design research method was used, focusing on implementation of the PRPP-Assessment based on parent-provided videos within the care of children with a mitochondrial disorder or similar symptoms. Five cycles were conducted. To receive input, the cycles used videos of nine children performing activities, written feedback, and semi-structured interviews and focus groups comprising parents (n = 13), a teacher (n = 1), occupational therapists (n = 16), and other professionals (n = 2). This led to successful implementation of the PRPP-Assessment. General lessons were learned on (1) instructing parents; (2) handling video material; (3) PRPP-Assessment based on parent-provided videos; and (4) PRPP-Assessment of children (with limited functional abilities). Lessons learned should be implemented in practice and are incorporated into a manual to guide the implementation of video-based observations with PRPP-Assessment in practice. pubtype: Academic Journal doctype: research tables/charts Journal Article ougenre: Article language: English refInfo: holdings: @attributes: islocal: N |
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