Social Network Characteristics and Correlations With Cognitive, Psychosocial, and Speech Function and Communication Participation for Adults With Multiple Sclerosis: A Pilot Study.

Purpose: This cross-sectional observational pilot study investigated egocentric social networks for 10 paired sex- and age-matched adults with and without multiple sclerosis (MS). This study also investigated the relationship between social network measures and various disease factors associated wit...

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Publicado en:Journal of Speech, Language & Hearing Research Vol. 66; no. 1; pp. 163 - 178
Autor principal: Feenaughty, Lynda
Formato: Artículo
Publicado: American Speech-Language-Hearing Association Jan2023
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Acceso en línea:Ver este registro en EBSCOhost
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      dt: Jan2023
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      pub: American Speech-Language-Hearing Association
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        10.1044/2022_JSLHR-22-00233
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        atl: Social Network Characteristics and Correlations With Cognitive, Psychosocial, and Speech Function and Communication Participation for Adults With Multiple Sclerosis: A Pilot Study.
      aug:
        au: Feenaughty, Lynda
        affil: School of Communication Sciences and Disorders, The University of Memphis, TN.
      su:
        Social network & psychology
        Social participation
        Memory
        Human research subjects
        Social networks
        Self-perception
        Age distribution
        Cross-sectional method
        Cognition
        Social isolation
        Informed consent (Medical law)
        Sex distribution
        Mental depression
        Communication
        Residential patterns
        Sociodemographic factors
        Adults
        Multiple sclerosis
        Pilot projects
        Scientific observation
        Intelligibility of speech
        Large-scale brain networks
        Mann Whitney U Test
        Surveys
        Comparative studies
        Neuropsychological tests
        Severity of illness index
        T-test (Statistics)
        Pearson correlation (Statistics)
        Independent living
        Descriptive statistics
        Fatigue (Physiology)
        Data analysis software
      sug:
        subj:
          Social network & psychology
          Social participation
          Memory
          Human research subjects
          Social networks
          Self-perception
          Age distribution
          Cross-sectional method
          Cognition
          Social isolation
          Informed consent (Medical law)
          Sex distribution
          Mental depression
          Communication
          Residential patterns
          Sociodemographic factors
          Adults
          Other Individual and Family Services
          Multiple sclerosis
          Pilot projects
          Scientific observation
          Intelligibility of speech
          Large-scale brain networks
          Mann Whitney U Test
          Surveys
          Comparative studies
          Neuropsychological tests
          Severity of illness index
          T-test (Statistics)
          Pearson correlation (Statistics)
          Independent living
          Descriptive statistics
          Fatigue (Physiology)
          Data analysis software
      ab: Purpose: This cross-sectional observational pilot study investigated egocentric social networks for 10 paired sex- and age-matched adults with and without multiple sclerosis (MS). This study also investigated the relationship between social network measures and various disease factors associated with MS. The relationship between social network measures and communication participation restrictions was also examined. Method: Participants completed a seven-item social network survey. Social network structure and composition were quantified. The network organization measures (structure analysis) included the total number of members (network size) and extent to which members are connected (network density). The measured characteristics of people around a participant (composition analysis) included the amount of kin relative to network size (proportion of kin), gender variation (gender diversity index), and age variation (standard deviation of age). Standard clinical neuropsychological, psychosocial, and speech metrics quantified processing speed, memory, depression, fatigue, and sentence intelligibility. Measures of communication participation and MS severity were also obtained. Results: Matched-pairs tests indicated that the proportion of kin significantly differed between paired participants, whereas all other social network measures were similar. For participants with MS, correlation analyses indicated weak associations between proportion of kin and cognitive, psychosocial, and speech measures. However, strong correlations were found between social network size and processing speed, memory, fatigue, MS severity, and communication participation. Gender diversity index also strongly correlated with depression. Conclusions: Results from this pilot study highlight the importance of evaluating egocentric networks in the clinical management of MS, as maintaining non-kin friendships may be difficult for adults with MS making them vulnerable to social isolation. Furthermore, those with small and less diverse networks may experience more severe cognitive and psychosocial problems and limited communication participation.
      pubtype: Academic Journal
      doctype: Article
      src: R
    language: English
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