Use of a Best Practice Alert (BPA) to Increase Diversity Within a US-Based Autism Research Cohort.

We evaluated the success of a best practice alert (BPA) in recruiting underrepresented families into an autism spectrum disorder research cohort by comparing BPA-response outcomes (Interested, Declined, Enrolled, Dismissed) in pediatric primary care practices (TCPs) serving diverse communities with...

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Published in:Journal of Autism & Developmental Disorders Vol. 53; no. 1; pp. 370 - 378
Main Authors: Duhon, Gabrielle F., Simon, Andrea R., Limon, Danica L., Ahmed, Kelli L., Marzano, Gabriela, Goin-Kochel, Robin P.
Format: pictorial research tables/charts Journal Article
Published: Springer Nature Jan2023
Online Access:View this record in EBSCOhost
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      dt: Jan2023
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      pub: Springer Nature
      place: New York, New York
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        atl: Use of a Best Practice Alert (BPA) to Increase Diversity Within a US-Based Autism Research Cohort.
      aug:
        au:
          Duhon, Gabrielle F.
          Simon, Andrea R.
          Limon, Danica L.
          Ahmed, Kelli L.
          Marzano, Gabriela
          Goin-Kochel, Robin P.
        affil: Department of Pediatrics, Baylor College of Medicine, Houston, TX, USA
      sug:
        subj:
          Autism Spectrum Disorder
          Clinical Research United States
          Research Subject Recruitment United States
          Minority Groups
          Human
          United States
          Prospective Studies
          Electronic Health Records
          Primary Health Care
          Private Sector
          Insurance, Health
          Descriptive Statistics
          Pediatric Care
      ab: We evaluated the success of a best practice alert (BPA) in recruiting underrepresented families into an autism spectrum disorder research cohort by comparing BPA-response outcomes (Interested, Declined, Enrolled, Dismissed) in pediatric primary care practices (TCPs) serving diverse communities with those of subspecialty clinics. Compared to subspecialty clinics, TCPs had higher proportions of Interested responses for patients with private insurance (60.9% vs. 46.2%), Dismissed responses for patients with public insurance (30.1% vs. 20.0%), and Interested responses for non-white patients (47.7% vs. 33.3%). A targeted BPA can help researchers access more diverse groups and improve equitable representation. However, select groups more often had their alert dismissed, suggesting possible selection bias among some pediatricians regarding who should receive information about study opportunities.
      pubtype: Academic Journal
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        pictorial
        research
        tables/charts
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      ougenre: Article
    language: English
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