Participation in physical activity of adolescents with congenital heart disease.

Background: Participation in physical activity improves health in individuals with congenital heart disease. However, most do not sufficiently engage in physical activity. The aim of this study was to collect information regarding the experiences of adolescents with congenital heart disease who prac...

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Publicado en:Child: Care, Health & Development Vol. 49; no. 2; pp. 311 - 321
Autores principales: Lavenant, Pauline, Cacioppo, Marine, Ansquer, Hélène, Guillaumont, Sophie, Houx, Laetitia, Brochard, Sylvain, Amedro, Pascal, Pons, Christelle
Formato: research tables/charts Journal Article
Publicado: Wiley-Blackwell Mar2023
Acceso en línea:Ver este registro en EBSCOhost
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      dt: Mar2023
      vid: 49
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      pub: Wiley-Blackwell
      place: Malden, Massachusetts
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        atl: Participation in physical activity of adolescents with congenital heart disease.
      aug:
        au:
          Lavenant, Pauline
          Cacioppo, Marine
          Ansquer, Hélène
          Guillaumont, Sophie
          Houx, Laetitia
          Brochard, Sylvain
          Amedro, Pascal
          Pons, Christelle
        affil: Department of Paediatrics, CHRU de Brest, Brest, France
      sug:
        subj:
          Physical Activity In Adolescence
          Heart Defects, Congenital Diagnosis
          Physical Performance
          Life Experiences
          Human
          France
          Adolescence
          Dyspnea
          Qualitative Studies
          Semi-Structured Interview
          Thematic Analysis
          Social Participation
          Anxiety
          Frustration
          Guilt
          Family Support
          Adolescent Health
          Adolescent: 13-18 years
      ab: Background: Participation in physical activity improves health in individuals with congenital heart disease. However, most do not sufficiently engage in physical activity. The aim of this study was to collect information regarding the experiences of adolescents with congenital heart disease who practiced physical activities. Methods: French adolescents aged 13–18 years, diagnosed with congenital heart disease, class I or II dyspnoea on the NYHA scale and authorized physical activity were interviewed individually about their physical activity experiences using a semi‐structured format. The qualitative interview transcript data were analysed using a phenomenological approach; data analysis was performed independently by three researchers and merged at each step until saturation. Results: Eleven adolescents with congenital heart disease participated. Three main themes emerged: 'own representation', 'physical activity (PA) set‐up' and 'environment'. Adolescents had a generally positive view of physical activity, which was associated with positive experiences. However, they reported that their physical condition limited PA, and they wished for adapted activities. The results revealed the importance of environmental factors, for example, within the social and school environments. The participants indicated that they appreciated the social interactions that PA afforded, but that integration into a group could be difficult, especially in school, with some participants describing feelings such as anxiety, frustration or guilt when they could not participate fully. PA facilitators included familial support. However, participants noted a lack of clear medical guidance to help them choose suitable activities based on their circumstances and personal preferences. They wished for the public to be better informed about congenital heart disease to reduce stigmatism. Conclusions: This study provides valuable information for clinicians, physical educators and policy makers to help them promote physical activity and support adolescents and their families in understanding their own condition, maximizing their potential and in their choice of activities.
      pubtype: Academic Journal
      doctype:
        research
        tables/charts
        Journal Article
      ougenre: Article
    language: English
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