"It Defines Who I Am" or "It's Something I Have": What Language Do [Autistic] Australian Adults [on the Autism Spectrum] Prefer?

There has been a recent shift from person-first to identity-first language to describe autism. In this study, Australian adults who reported having a diagnosis of autism (N = 198) rated and ranked autism-terms for preference and offensiveness, and explained their choice in free-text. 'Autistic', 'Pe...

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Publicado en:Journal of Autism & Developmental Disorders Vol. 53; no. 2; pp. 677 - 688
Autores principales: Bury, Simon M., Jellett, Rachel, Spoor, Jennifer R., Hedley, Darren
Formato: research tables/charts Journal Article
Publicado: Springer Nature Feb2023
Acceso en línea:Ver este registro en EBSCOhost
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      dt: Feb2023
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      pub: Springer Nature
      place: New York, New York
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        atl: "It Defines Who I Am" or "It's Something I Have": What Language Do [Autistic] Australian Adults [on the Autism Spectrum] Prefer?
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        au:
          Bury, Simon M.
          Jellett, Rachel
          Spoor, Jennifer R.
          Hedley, Darren
        affil: Olga Tennison Autism Research Centre, School of Psychology and Public Health, La Trobe University, 3086, Melbourne, VIC, Australia
      sug:
        subj:
          Autism Spectrum Disorder Diagnosis
          Language
          Patient Attitudes
          Persons with Disabilities Psychosocial Factors
          Self Concept
          Patient Preference
          Australians
          Human
          Australia
          Adult
          Thematic Analysis
          Social Identity
          Stigma
          Nomenclature
          Adult: 19-44 years
      ab: There has been a recent shift from person-first to identity-first language to describe autism. In this study, Australian adults who reported having a diagnosis of autism (N = 198) rated and ranked autism-terms for preference and offensiveness, and explained their choice in free-text. 'Autistic', 'Person on the Autism Spectrum', and 'Autistic Person' were rated most preferred and least offensive overall. Ranked-means showed 'person on the autism spectrum' was the most preferred term overall. Six qualitative themes reflected (1) autism as core to, or (2) part of one's identity, (3) 'spectrum' reflecting diversity, (4) the rejection of stigmatising and (5) medicalised language, and (6) pragmatics. These findings highlight the importance of inclusive dialogue regarding individual language preference.
      pubtype: Academic Journal
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        research
        tables/charts
        Journal Article
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    language: English
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