Sexual and reproductive health services for autistic young people in the United States: A conceptual model of utilization.

Background: Sexual and reproductive health services promote the ability of people to have safe, satisfying, non‐coercive sexual experiences and make informed decisions about pregnancy. Stakeholder input is needed to understand barriers or facilitators to service access for autistic people, who repor...

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Publicado en:Perspectives on Sexual & Reproductive Health Vol. 55; no. 1; pp. 49 - 62
Autores principales: Holmes, Laura Graham, Anderson, Kristy, Sieber, Greg S., Shattuck, Paul T.
Formato: research tables/charts Journal Article
Publicado: Wiley-Blackwell Mar2023
Acceso en línea:Ver este registro en EBSCOhost
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      dt: Mar2023
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        atl: Sexual and reproductive health services for autistic young people in the United States: A conceptual model of utilization.
      aug:
        au:
          Holmes, Laura Graham
          Anderson, Kristy
          Sieber, Greg S.
          Shattuck, Paul T.
        affil: A.J. Drexel Autism Institute, Drexel University, Philadelphia Pennsylvania,, USA
      sug:
        subj:
          Sexual Health United States
          Reproductive Health
          Autism Spectrum Disorder United States
          Health Services Accessibility
          Conceptual Framework
          Persons with Intellectual Disabilities
          United States
          Safe Sex
          Interviews
          Surveys
          Funding Source
          Health Services Needs and Demand
          Stakeholder Participation
          Neurodiversity
          Attitude to Sexuality
          Communication
          Patient Centered Care
          Appointments and Schedules
          Human
          Male
          Female
          Infant
          Child, Preschool
          Child
          Adolescence
          Delphi Technique
          Infant: 1-23 months
          Child, Preschool: 2-5 years
          Child: 6-12 years
          Adolescent: 13-18 years
          Male
          Female
      ab: Background: Sexual and reproductive health services promote the ability of people to have safe, satisfying, non‐coercive sexual experiences and make informed decisions about pregnancy. Stakeholder input is needed to understand barriers or facilitators to service access for autistic people, who report unmet needs. Methods: We recruited 18 autistic people, 15 parents, and 15 service providers in the United States to participate in an interview and two surveys. Using their input, we created a conceptual model of sexual and reproductive health service needs, access barriers, and facilitators. Results: Stakeholders rated a variety of sexual and reproductive health services as important for autistic people, including those with intellectual disability or minimal verbal language. Stakeholders identified barriers to sexual and reproductive health service utilization including lack of service availability, lack of service providers with autism or neurodiversity training, lack of accurate information about autism and sexuality, verbal and communication differences that are not accommodated by service providers, and socio‐cultural attitudes about sexuality. Stakeholders identified facilitators to service access including person‐centered, trauma‐informed care, service accommodations such as clear and detailed expectations, and long‐enough appointments. We created a conceptual model based on the social ecological model of health to organize these utilization factors and support future research, provider, and policy action. Stakeholders provided feedback and responded favorably on the model's accuracy, utility for spurring research, practice, and policy improvements, and application to diverse groups of autistic people. Conclusions: The model shows the many feasible ways to support equitable access to services for autistic people.
      pubtype: Academic Journal
      doctype:
        research
        tables/charts
        Journal Article
      ougenre: Article
    language: English
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