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The Impact of COVID-19 Restrictions on Psychological Distress in Family Caregivers of Children with Neurodevelopmental Disability in the UK.

Caregivers of a child with a neurodevelopmental disability are more vulnerable to mental health difficulties. These difficulties are influenced by the child's challenging behaviours, and the caregiver's coping strategies; factors impacted by the COVID-19 pandemic. An online mixed methods survey was...

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Published in:Journal of Autism & Developmental Disorders Vol. 53; no. 4; pp. 1573 - 1588
Main Authors: Gillespie-Smith, Karri, McConachie, Doug, Ballantyne, Carrie, Auyeung, Bonnie, Goodall, Karen
Format: research tables/charts Journal Article
Published: Springer Nature Apr2023
Online Access:View this record in EBSCOhost
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      dt: Apr2023
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      pub: Springer Nature
      place: New York, New York
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        10.1007/s10803-021-05132-3
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        atl: The Impact of COVID-19 Restrictions on Psychological Distress in Family Caregivers of Children with Neurodevelopmental Disability in the UK.
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          Gillespie-Smith, Karri
          McConachie, Doug
          Ballantyne, Carrie
          Auyeung, Bonnie
          Goodall, Karen
        affil: Department of Health and Clinical Psychology, School of Health in Social Science, University of Edinburgh, EH8 9AG, Edinburgh, Scotland, UK
      sug:
        subj:
          Mental Disorders Diagnosed in Childhood United Kingdom
          Caregivers Psychosocial Factors
          Psychological Distress
          COVID-19 Pandemic Prevention and Control
          Stay-at-Home Orders Psychosocial Factors
          United Kingdom
          Human
          Multimethod Studies
          Coping
          Thematic Analysis
          Scales
          Checklists
      ab: Caregivers of a child with a neurodevelopmental disability are more vulnerable to mental health difficulties. These difficulties are influenced by the child's challenging behaviours, and the caregiver's coping strategies; factors impacted by the COVID-19 pandemic. An online mixed methods survey was conducted on caregivers of children with neurodevelopmental disabilities (n = 43) and children who are typically developing (n = 67). The results showed that presence of challenging behaviours related to neurodevelopmental disability, and caregiver coping strategies predicted caregiver psychological distress during lockdown. Themes that emerged included 'confusing messages and guidance', 'loss of freedom' and 'unsupported and forgotten'. The results demonstrate the pressing need for the implementation of appropriate support to protect the mental health of caregivers across the UK.
      pubtype: Academic Journal
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        tables/charts
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    language: English
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