Measuring quality and value in genetic counseling: The current landscape and future directions.
Genetic counselors strive to provide high‐quality genetic services. To do so, it is essential to define quality in genetic counseling and identify opportunities for improvement. This Professional Issues article provides an overview of the evaluation of healthcare quality in genetic counseling. The N...
| Published in: | Journal of Genetic Counseling Vol. 32; no. 2; pp. 315 - 325 |
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| Main Authors: | , , , , , , , , |
| Format: | review tables/charts Journal Article |
| Published: |
Wiley-Blackwell
Apr2023
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| Online Access: | View this record in EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ccm&AN=162897327&site=ehost-live header: @attributes: shortDbName: ccm uiTerm: 162897327 longDbName: CINAHL Complete uiTag: AN controlInfo: bkinfo: dissinfo: jinfo: jid: 10597700 41A jtl: Journal of Genetic Counseling issn: 10597700 maglogo: N pubinfo: dt: Apr2023 vid: 32 iid: 2 pid: 480 pub: Wiley-Blackwell place: Malden, Massachusetts artinfo: ui: 162897327 160249663 162897327 162897327 10.1002/jgc4.1657 162897327 ppf: 315 ppct: 10 formats: fmt: – @attributes: type: T – @attributes: type: C – @attributes: type: P tig: atl: Measuring quality and value in genetic counseling: The current landscape and future directions. aug: au: Higgs, Emily Wain, Karen E. Wynn, Julia Cho, Megan T. Higgins, Sonja Blaisdell, David Dugan, Donna Valek, Sara Cohen, Stephanie affil: Cardiovascular Genetics Program, University of California, San Francisco California,, USA sug: subj: Genetic Counseling Psychosocial Factors Counselors Psychosocial Factors Quality Assessment Health Care Delivery Genetic Screening Psychometrics Patient Care Task Performance and Analysis Medical Practice, Evidence-Based Patient Satisfaction Accountability Program Development Program Evaluation ab: Genetic counselors strive to provide high‐quality genetic services. To do so, it is essential to define quality in genetic counseling and identify opportunities for improvement. This Professional Issues article provides an overview of the evaluation of healthcare quality in genetic counseling. The National Society of Genetic Counselors' Research, Quality, and Outcomes Committee partnered with Discern Health, a value‐based healthcare policy consulting firm, to develop a care continuum model of genetic counseling. Using the proposed model, currently available quality measures relevant to genetic counseling in the US healthcare system were assessed, allowing for the identification of gaps and priority areas for further development. A total of 560 quality measures were identified that can be applied to various aspects of the care continuum model across a range of clinical specialty areas in genetic counseling, although few measures were specific to genetic counseling or genetic conditions. Areas where quality measures were lacking included: attitudes toward genetic testing, family communication, stigma, and issues of justice, equity, diversity, and inclusion. We discuss these findings and other strategies for an evidence‐based approach to quality in genetic counseling. Strategic directions for the genetic counseling profession should include a consolidated approach to research on quality and value of genetic counseling, development of quality metrics and patient‐experience measures, and engagement with other improvement activities. These strategies will allow for benchmarking, performance improvement, and future implementation in accountability programs which will strengthen genetic counseling as a profession that provides evidence‐based high‐quality care to all patients. pubtype: Academic Journal doctype: review tables/charts Journal Article ougenre: Article language: English refInfo: holdings: @attributes: islocal: N |
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