Feasibility of Systems Support Mapping to guide patient-driven health self-management in colorectal cancer survivors.

To evaluate feasibility of System Support Mapping (MAP), a systems thinking activity that involves creating a diagram of existing self-management activities (e.g. symptom management, health behaviors) to facilitate autonomous engagement in optimal self-management. One-arm pilot study of MAP in color...

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Publicado en:Psychology & Health Vol. 38; no. 5; pp. 602 - 623
Autores principales: Sohl, Stephanie J., Befus, Deanna, Tooze, Janet A., Levine, Beverly, Golden, Shannon L., Puccinelli-Ortega, Nicole, Pasche, Boris C., Weaver, Kathryn E., Lich, Kristen Hassmiller
Formato: research tables/charts Journal Article
Publicado: Taylor & Francis Ltd May2023
Acceso en línea:Ver este registro en EBSCOhost
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      dt: May2023
      vid: 38
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      pub: Taylor & Francis Ltd
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        10.1080/08870446.2021.1979549
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        atl: Feasibility of Systems Support Mapping to guide patient-driven health self-management in colorectal cancer survivors.
      aug:
        au:
          Sohl, Stephanie J.
          Befus, Deanna
          Tooze, Janet A.
          Levine, Beverly
          Golden, Shannon L.
          Puccinelli-Ortega, Nicole
          Pasche, Boris C.
          Weaver, Kathryn E.
          Lich, Kristen Hassmiller
        affil: Wake Forest School of Medicine, Medical Center Boulevard, Winston-Salem, NC, USA
      sug:
        subj:
          Colorectal Neoplasms
          Cancer Survivors
          Self-Management
          Decision Support Systems, Clinical
          Funding Source
          Human
          Qualitative Studies
          Content Analysis
          Descriptive Statistics
          Data Analysis Software
          Confidence Intervals
          Chi Square Test
          T-Tests
          Pilot Studies
          Self-Efficacy
          Patient Autonomy
          Exploratory Research
          Health Behavior
          Scales
          Fisher's Exact Test
          Male
          Female
          Adult
          Adult: 19-44 years
          Male
          Female
      ab: To evaluate feasibility of System Support Mapping (MAP), a systems thinking activity that involves creating a diagram of existing self-management activities (e.g. symptom management, health behaviors) to facilitate autonomous engagement in optimal self-management. One-arm pilot study of MAP in colorectal cancer survivors (NCT03520283). Feasibility of recruitment and retention (primary outcome), acceptability, and outcome variability over time. We enrolled 24 of 66 cancer survivors approached (36%) and 20 completed follow-up (83%). Key reasons for declining participation included: not interested (n = 18), did not perceive a need (n = 9), and emotional distress/overwhelmed (n = 7). Most participants reported that MAP was acceptable (e.g. 80% liked MAP quite a bit/very much). Exploratory analyses revealed a −4.68 point reduction in fatigue from before to 2 weeks after MAP exceeding a minimally important difference (d = −0.68). There were also improvements in patient autonomy (d = 0.63), self-efficacy (for managing symptoms: d = 0.56, for managing chronic disease: d = 0.44), psychological stress (d = −0.45), anxiety (d = −0.34), sleep disturbance (d = −0.29) and pain (d = −0.32). Qualitative feedback enhanced interpretation of results. MAP feasibility in colorectal cancer survivors was mixed, predominantly because many patients did not perceive a need for this approach. MAP was acceptable among participants and showed promise for improving health outcomes.
      pubtype: Academic Journal
      doctype:
        research
        tables/charts
        Journal Article
      ougenre: Article
    language: English
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