At the intersection of trust and mistrust: A qualitative analysis of motivators and barriers to research participation at a safety‐net hospital.
Introduction: The underrepresentation of Black, Indigenous, and People of Color (BIPOC) individuals in healthcare research limits generalizability and contributes to healthcare inequities. Existing barriers and attitudes toward research participation must be addressed to increase the representation...
| Publicado en: | Health Expectations Vol. 26; no. 3; pp. 1118 - 1127 |
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| Autores principales: | , , , , , , , , |
| Formato: | research tables/charts Journal Article |
| Publicado: |
Wiley-Blackwell
Jun2023
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| Acceso en línea: | Ver este registro en EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ccm&AN=163488488&site=ehost-live header: @attributes: shortDbName: ccm uiTerm: 163488488 longDbName: CINAHL Complete uiTag: AN controlInfo: bkinfo: dissinfo: jinfo: jid: 13696513 EVY jtl: Health Expectations issn: 13696513 maglogo: Y pubinfo: dt: Jun2023 vid: 26 iid: 3 pid: 480 pub: Wiley-Blackwell place: Malden, Massachusetts artinfo: ui: 163488488 162301839 163488488 163488488 10.1111/hex.13726 163488488 ppf: 1118 ppct: 9 formats: fmt: – @attributes: type: T – @attributes: type: C – @attributes: type: P tig: atl: At the intersection of trust and mistrust: A qualitative analysis of motivators and barriers to research participation at a safety‐net hospital. aug: au: Tamlyn, Autumn L. Tjilos, Maria Bosch, Nicholas A. Barnett, Katherine Gergen Perkins, Rebecca B. Walkey, Allan Assoumou, Sabrina A. Linas, Benjamin P. Drainoni, Mari‐Lynn affil: Boston Medical Center, Section of Infectious Disease, Boston MA,, USA sug: subj: Trust Motivation Researcher-Subject Relations Research Subjects Psychosocial Factors Safety-Net Providers Hospitals Sampling Bias Minority Groups Healthcare Disparities Medically Underserved Health Services Accessibility Consumer Participation Human Semi-Structured Interview Qualitative Studies Hospitals, Urban Content Analysis Program Implementation Conceptual Framework Thematic Analysis Homelessness Male Female Socioeconomic Factors Adult Middle Age Aged Descriptive Statistics African Americans Indigenous Peoples Funding Source Adult: 19-44 years Middle Aged: 45-64 years Aged: 65+ years Male Female ab: Introduction: The underrepresentation of Black, Indigenous, and People of Color (BIPOC) individuals in healthcare research limits generalizability and contributes to healthcare inequities. Existing barriers and attitudes toward research participation must be addressed to increase the representation of safety net and other underserved populations. Methods: We conducted semi‐structured qualitative interviews with patients at an urban safety net hospital, focusing on facilitators, barriers, motivators, and preferences for research participation. We conducted direct content analysis guided by an implementation framework and used rapid analysis methods to generate final themes. Results: We completed 38 interviews and identified six major themes related to preferences for engagement in research participation: (1) wide variation in research recruitment preferences; (2) logistical complexity negatively impacts willingness to participate; (3) risk contributes to hesitation toward research participation; (4) personal/community benefit, interest in study topic, and compensation serve as motivators for research participation; (5) continued participation despite reported shortcomings of informed consent process; and (6) mistrust could be overcome by relationship or credibility of information sources. Conclusion: Despite barriers to participation in research studies among safety‐net populations, there are also facilitators that can be implemented to increase knowledge and comprehension, ease of participation, and willingness to join research studies. Study teams should vary recruitment and participation methods to ensure equal access to research opportunities. Patient/Public Contribution: Our analysis methods and study progress were presented to individuals within the Boston Medical Center healthcare system. Through this process community engagement specialists, clinical experts, research directors, and others with significant experience working with safety‐net populations supported data interpretation and provided recommendations for action following the dissemination of data. pubtype: Academic Journal doctype: research tables/charts Journal Article ougenre: Article language: English refInfo: holdings: @attributes: islocal: N |
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