Cracks that Let the Light in: Collective Reflections on Integrating Lived Experience of Psychosis in Research and Policy in the Context of a Global Commission.
Within psychiatric research fields, there has been a marked uptick of interest in service user involvement in recent years. Nevertheless, it is often unclear how robust or impactful common forms of inclusion are, and the extent to which they have included individuals with psychosis. Using collective...
| Publicado en: | Community Mental Health Journal Vol. 59; no. 5; pp. 819 - 826 |
|---|---|
| Autores principales: | , , , , , , , |
| Formato: | Artículo |
| Publicado: |
Springer Nature
Jul2023
|
| Materias: | |
| Acceso en línea: | Ver este registro en EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ssf&AN=163936842&site=ehost-live header: @attributes: shortDbName: ssf uiTerm: 163936842 longDbName: Social Sciences Full Text (H.W. Wilson) uiTag: AN controlInfo: bkinfo: jinfo: jid: 00103853 CMH jtl: Community Mental Health Journal issn: 00103853 maglogo: N pubinfo: dt: Jul2023 vid: 59 iid: 5 pid: 237 pub: Springer Nature artinfo: ui: 163936842 10.1007/s10597-023-01118-w ppf: 819 ppct: 7 formats: fmt: – @attributes: type: T – @attributes: type: P size: 765KB tig: atl: Cracks that Let the Light in: Collective Reflections on Integrating Lived Experience of Psychosis in Research and Policy in the Context of a Global Commission. aug: au: Lee, Ying Ying Buyanga, Musa Mehta, Akriti Omowunmi, Olayinka Aturu Ryan, Grace Sunkel, Charlene Vasquez, Alberto Jones, Nev affil: Research Division, Institute of Mental Health, Buangkok, Singapore SUCCEED Zimbabwe, Zimbabwe, South Africa SUCCEED Nigeria, Lagos, Nigeria Department of Methodology, London School of Economics and Political Science, London, UK Department of Population Health, London School of Hygiene & Tropical Medicine, London, UK Global Mental Health Peer Network, Paarl Western Cape, South Africa Sociedad y Discapacidad, Lima, Peru Centre for Inclusive Policy, Geneva, Switzerland School of Social Work, University of Pittsburgh, Pittsburgh, USA Pittsburgh, United States su: Policy sciences Psychiatry Group identity Mental health Human research subjects Ethnology research Population geography Experience Attitude (Psychology) Psychoses Practical politics Patient participation Cultural pluralism Patient selection sug: subj: Policy sciences Psychiatry Group identity Mental health Human research subjects Ethnology research Population geography Experience Attitude (Psychology) Psychoses Practical politics Patient participation Cultural pluralism Offices of Mental Health Practitioners (except Physicians) Patient selection keyword: Co-production Global Mental Health Lived Experience Participatory Research Psychosis Service User Involvement User-Led Research Co-production Global Mental Health Lived Experience Participatory Research Psychosis Service User Involvement User-Led Research ab: Within psychiatric research fields, there has been a marked uptick of interest in service user involvement in recent years. Nevertheless, it is often unclear how robust or impactful common forms of inclusion are, and the extent to which they have included individuals with psychosis. Using collective auto-ethnography, this paper describes the experiences of 8 academic and non-academic members of the 'lived experience' and participatory research workgroup of a global psychosis Commission and our navigation of power and power hierarchies, differences in background and training, and multiple vectors of identity, diversity, and privilege. We conclude that the realities of "involvement" are much messier, more fraught, and less intrinsically empowering than often signaled in calls for involvement and co-production. We nevertheless stress the power of collective dialogue and support—between and among a pluralistic group—and of honesty and transparency about challenges, barriers, and the colonial underpinnings and geopolitics of global mental health. pubtype: Academic Journal doctype: Article src: R language: English refInfo: copyright: @attributes: flag: N holdings: @attributes: islocal: N |
|---|