Translating Precision Health for Pediatrics: A Scoping Review.

Precision health aims to personalize treatment and prevention strategies based on individual genetic differences. While it has significantly improved healthcare for specific patient groups, broader translation faces challenges with evidence development, evidence appraisal, and implementation. These...

Descripción completa

Detalles Bibliográficos
Publicado en:Children Vol. 10; no. 5; pp. 897 - 917
Autores principales: Subasri, Mathushan, Cressman, Celine, Arje, Danielle, Schreyer, Leighton, Cooper, Erin, Patel, Komal, Ungar, Wendy J., Barwick, Melanie, Denburg, Avram, Hayeems, Robin Z.
Formato: research systematic review tables/charts Journal Article
Publicado: MDPI May2023
Acceso en línea:Ver este registro en EBSCOhost
fields @attributes:
  recordID: 1
pdfLink:
plink: https://search.ebscohost.com/login.aspx?direct=true&db=ccm&AN=163938869&site=ehost-live
header:
  @attributes:
    shortDbName: ccm
    uiTerm: 163938869
    longDbName: CINAHL Complete
    uiTag: AN
  controlInfo:
    bkinfo:
    dissinfo:
    jinfo:
      jid:
        22279067
        LW6K
      jtl: Children
      issn: 22279067
      maglogo: N
    pubinfo:
      dt: May2023
      vid: 10
      iid: 5
      pid: 97109
      pub: MDPI
    artinfo:
      ui:
        163938869
        163938869
        163938869
        10.3390/children10050897
        163938869
      ppf: 897
      ppct: 20
      formats:
      tig:
        atl: Translating Precision Health for Pediatrics: A Scoping Review.
      aug:
        au:
          Subasri, Mathushan
          Cressman, Celine
          Arje, Danielle
          Schreyer, Leighton
          Cooper, Erin
          Patel, Komal
          Ungar, Wendy J.
          Barwick, Melanie
          Denburg, Avram
          Hayeems, Robin Z.
        affil: Child Health Evaluative Sciences Program, The Hospital for Sick Children Research Institute, Toronto, ON M5G 1X8, Canada
      sug:
        subj:
          Individualized Medicine
          Pediatrics
          Translations
          Implementation Science
          Human
          Funding Source
          Systematic Review
          Scoping Review
          PubMed
          Embase
          Translational Medical Research
          Cost Effectiveness Analysis
          Technology
          Ethics
      ab: Precision health aims to personalize treatment and prevention strategies based on individual genetic differences. While it has significantly improved healthcare for specific patient groups, broader translation faces challenges with evidence development, evidence appraisal, and implementation. These challenges are compounded in child health as existing methods fail to incorporate the physiology and socio-biology unique to childhood. This scoping review synthesizes the existing literature on evidence development, appraisal, prioritization, and implementation of precision child health. PubMed, Scopus, Web of Science, and Embase were searched. The included articles were related to pediatrics, precision health, and the translational pathway. Articles were excluded if they were too narrow in scope. In total, 74 articles identified challenges and solutions for putting pediatric precision health interventions into practice. The literature reinforced the unique attributes of children and their implications for study design and identified major themes for the value assessment of precision health interventions for children, including clinical benefit, cost-effectiveness, stakeholder values and preferences, and ethics and equity. Tackling these identified challenges will require developing international data networks and guidelines, re-thinking methods for value assessment, and broadening stakeholder support for the effective implementation of precision health within healthcare organizations. This research was funded by the SickKids Precision Child Health Catalyst Grant.
      pubtype: Academic Journal
      doctype:
        research
        systematic review
        tables/charts
        Journal Article
      ougenre: Article
    language: English
    refInfo:
    holdings:
      @attributes:
        islocal: N