The "Managing Fatigue" programme – Experiences shared by MS participants.

The "Managing Fatigue" (MF) programme can help people living with Multiple sclerosis (MS) manage fatigue in their everyday lives. The programme has been proven feasible with Swedish occupational therapists, but there is a lack of knowledge of how MS participants experience the programme, and what th...

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Publicado en:Scandinavian Journal of Occupational Therapy Vol. 30; no. 5; pp. 693 - 703
Autores principales: Gillisdotter, Anna, Regardt, Malin, Månsson Lexell, Eva
Formato: research tables/charts Journal Article
Publicado: Springer Nature Jul2023
Acceso en línea:Ver este registro en EBSCOhost
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      dt: Jul2023
      vid: 30
      iid: 5
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      pub: Springer Nature
      place: New York, New York
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        10.1080/11038128.2021.1905057
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        atl: The "Managing Fatigue" programme – Experiences shared by MS participants.
      aug:
        au:
          Gillisdotter, Anna
          Regardt, Malin
          Månsson Lexell, Eva
        affil: Medical Unit Occupational Therapy and Physiotherapy, Function Allied Health Professionals, Karolinska University Hospital, Stockholm, Sweden
      sug:
        subj:
          Multiple Sclerosis Rehabilitation
          Fatigue Prevention and Control
          Education, Medical
          Program Development
          Occupational Health Services
          Self-Management
          Human
          Qualitative Studies
          Sweden
          Male
          Female
          Adult
          Middle Age
          Descriptive Research
          Semi-Structured Interview
          Content Analysis
          Patient Centered Care
          Audiorecording
          Data Analysis Software
          Occupational Health
          Skill Acquisition
          Funding Source
          Scales
          Adult: 19-44 years
          Middle Aged: 45-64 years
          Male
          Female
      ab: The "Managing Fatigue" (MF) programme can help people living with Multiple sclerosis (MS) manage fatigue in their everyday lives. The programme has been proven feasible with Swedish occupational therapists, but there is a lack of knowledge of how MS participants experience the programme, and what they learned from participating in the programme. To describe how Swedish MS participants experience the content and structure of the Swedish MF programme, as well as what they learned from participating in the programme. Qualitative interviews were performed with nine MS participants, and data were analysed according to direct content analysis. Participants experienced programme material was relevant, and they valued the structured sessions that utilised different teaching forms. Participants described the group format and the experienced course leader nurtured their learning process. They learned occupational skills to save energy, to re-value daily occupations, and initiated a process of change, but individual support is needed after programme completion. Findings support programme feasibility among MS participants, and show the importance of being able to practice skills to handle fatigue in everyday life. Future studies should consider adding outcome measures focussing on engagement in occupations when evaluating programme effectiveness.
      pubtype: Academic Journal
      doctype:
        research
        tables/charts
        Journal Article
      ougenre: Article
    language: English
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