Something to chat about: An analysis of genetic counseling via asynchronous messaging following direct‐to‐consumer genetic testing.
Advances in technology, decreasing cost of genetic testing, and growing public interest in genetics marked by an increased uptake of genetic testing, particularly direct‐to‐consumer genetic testing (DTC‐GT), have led to an overwhelming demand for genetic counseling services. As such, various alterna...
| Publicado en: | Journal of Genetic Counseling Vol. 32; no. 3; pp. 717 - 728 |
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| Autores principales: | , , , , |
| Formato: | research tables/charts Journal Article |
| Publicado: |
Wiley-Blackwell
Jun2023
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| Acceso en línea: | Ver este registro en EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ccm&AN=164281761&site=ehost-live header: @attributes: shortDbName: ccm uiTerm: 164281761 longDbName: CINAHL Complete uiTag: AN controlInfo: bkinfo: dissinfo: jinfo: jid: 10597700 41A jtl: Journal of Genetic Counseling issn: 10597700 maglogo: N pubinfo: dt: Jun2023 vid: 32 iid: 3 pid: 480 pub: Wiley-Blackwell place: Malden, Massachusetts artinfo: ui: 164281761 164281761 164281761 10.1002/jgc4.1683 164281761 ppf: 717 ppct: 11 formats: fmt: – @attributes: type: T – @attributes: type: C – @attributes: type: P tig: atl: Something to chat about: An analysis of genetic counseling via asynchronous messaging following direct‐to‐consumer genetic testing. aug: au: Koerner, Cari Wetzel, Heather Klass, Andrie Doyle, Lauren E. Mills, Rachel affil: Genetic Counseling Program, The University of North Carolina at Greensboro, Greensboro North Carolina,, USA sug: subj: Genetic Screening Methods Genetic Counseling Communication Evaluation Communication Methods Human Genetics Thematic Analysis Genetic Counselors Communication Classification Motivation Emotions Spirituality Professional-Patient Relations Information Needs Mutation Time Health Information Needs Assessment Genetic Counseling Education ab: Advances in technology, decreasing cost of genetic testing, and growing public interest in genetics marked by an increased uptake of genetic testing, particularly direct‐to‐consumer genetic testing (DTC‐GT), have led to an overwhelming demand for genetic counseling services. As such, various alternative service delivery models have been proposed to increase access to genetic counseling. Some service delivery models, such as asynchronous messaging, remain unexplored in the genetic counseling literature. The purpose of this study was to assess communication during genetic counseling for DTC‐GT through asynchronous messaging. A thematic analysis was conducted on 34 de‐identified chat transcripts between genetic counselors and clients who underwent DTC‐GT. Six categories of communication were identified and were grouped based on communication sources from either the client or the genetic counselor. Categories observed in client communication were motivations for seeking DTC testing and/or genetic counseling services, questions posed to the genetic counselor, responses provided during the session, and psychosocial aspects of the session related to the clients' mental, emotional, social, and spiritual needs. Categories of communication that emerged from the genetic counselors' communications were educational aspects of the session and counseling strategies to address concerns that are not related to educational or informational needs. Most clients had specific questions about variants detected or specific conditions. Many clients asked about appropriate subsequent steps related to additional testing or medical management. Genetic counselors discussed the limitations of DTC‐GT and recommendations for clinical grade testing in almost all chat transcripts. In several chats, the genetic counselor provided advice to the client related to minimizing time sorting through likely benign results and refraining from altering medical management. Results suggest that genetic counselors are able to provide genetic information to clients and respond to their mental and emotional needs through asynchronous chat following DTC‐GT. Findings from this study provide initial insight into a unique genetic counseling delivery model and reveal the informational and counseling needs of clients following DTC‐GT. pubtype: Academic Journal doctype: research tables/charts Journal Article ougenre: Article language: English refInfo: holdings: @attributes: islocal: N |
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