The reliability and validity of the perceive, recall, plan and perform assessment in children with a mitochondrial disorder.

To investigate the reliability and validity of the Perceive, Recall, Plan and Perform System of Task Analysis (PRPP-Assessment) by parent-provided videos of children with mitochondrial disorders. Videos of 13 children performing 3–7 activities each were the subject of study, resulting in 65 activiti...

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Publicado en:Disability & Rehabilitation Vol. 45; no. 14; pp. 2354 - 2368
Autores principales: Lindenschot, Marieke, Koene, Saskia, Nott, Melissa T., Nijhuis-van der Sanden, Maria W. G., de Groot, Imelda J. M., Steultjens, Esther M. J., Graff, Maud J. L.
Formato: research tables/charts Journal Article
Publicado: Taylor & Francis Ltd Jul2023
Acceso en línea:Ver este registro en EBSCOhost
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      dt: Jul2023
      vid: 45
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      pub: Taylor & Francis Ltd
      place: Philadelphia, Pennsylvania
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        10.1080/09638288.2022.2087765
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        atl: The reliability and validity of the perceive, recall, plan and perform assessment in children with a mitochondrial disorder.
      aug:
        au:
          Lindenschot, Marieke
          Koene, Saskia
          Nott, Melissa T.
          Nijhuis-van der Sanden, Maria W. G.
          de Groot, Imelda J. M.
          Steultjens, Esther M. J.
          Graff, Maud J. L.
        affil: Department of IQ Healthcare, Radboud Institute for Health Sciences, Nijmegen, The Netherlands
      sug:
        subj:
          Instrument Validation
          Clinical Assessment Tools
          Reliability and Validity
          Mitochondrial Diseases In Infancy and Childhood
          Memory In Infancy and Childhood
          Task Performance and Analysis
          Videorecording
          Human
          Female
          Male
          Child
          Adolescence
          Validation Studies
          Psychometrics
          Cross Sectional Studies
          Scales
          Occupational Therapists
          Cognition
          Consent (Research)
          Internal Consistency
          Coefficient alpha
          Intrarater Reliability
          Interrater Reliability
          Construct Validity
          Rasch Analysis
          Descriptive Statistics
          Funding Source
          Child: 6-12 years
          Adolescent: 13-18 years
          Female
          Male
      ab: To investigate the reliability and validity of the Perceive, Recall, Plan and Perform System of Task Analysis (PRPP-Assessment) by parent-provided videos of children with mitochondrial disorders. Videos of 13 children performing 3–7 activities each were the subject of study, resulting in 65 activities. These were scored using the PRPP-Assessment by 11 raters. Internal consistency was calculated with Cronbach's alpha. Intra-rater reliability was evaluated by Bland-Altman Plots on 44 PRPP-Assessment scores. Inter-rater reliability was calculated with ICCAgreement on 128 PRPP-Assessment scores. Construct validity was assessed by comparing the PRPP-Assessment scores to the Canadian Occupational Performance Measure using Cohen's Kappa. PRPP-Assessments scores were evaluated with a multi-faceted Rasch Analysis. Internal consistency was high (0.92). Intra-rater reliability was sufficient to be good (92–96% within the 95%-Limits of the Agreement). The ICCAgreement for stage 1 Mastery Score showed acceptable inter-rater reliability (0.646). Stage 2 of the PRPP-Assessment showed low ICCs due to a lack of variability within the sample. Four out of six hypotheses on validity were accepted. Rasch's analysis demonstrated sound goodness-of-fit, and supported the validity of the PRPP-Assessment. The PRPP-Assessment by parent-provided videos in this heterogenic group showed sufficient to good psychometric properties. In practice, careful task selection and formulating criterion is recommended. PRPP-Assessment by parent-provided videos is reliable and valid in the complex, heterogenous group of children with mitochondrial disorders The PRPP-Assessment is suitable for children with mitochondrial disorders as it showed to contain familiar, functional and meaningful tasks and activities that fit with their level of functioning Professionals should be aware that parents might not be used to the criterium-based frame of reference of the PRPP-Assessment When applying the PRPP-Assessment, it is recommended to be careful in task selection and formulating the criterion.
      pubtype: Academic Journal
      doctype:
        research
        tables/charts
        Journal Article
      ougenre: Article
    language: English
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