Tablet-based patient educational interventions in care and management of complex movement disorders.
Patient education is an essential part of management of complex, disabling neurological disorders. Mobile web-based educational materials provide a novel and potentially valuable means to communicate clinical information that can aid in both medical management and rehabilitation. We, therefore, eval...
| Published in: | Disability & Rehabilitation: Assistive Technology Vol. 18; no. 5; pp. 627 - 635 |
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| Main Authors: | , , , , , , |
| Format: | clinical trial research tables/charts Journal Article |
| Published: |
Taylor & Francis Ltd
Jul2023
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| Online Access: | View this record in EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ccm&AN=164617401&site=ehost-live header: @attributes: shortDbName: ccm uiTerm: 164617401 longDbName: CINAHL Complete uiTag: AN controlInfo: bkinfo: dissinfo: jinfo: jid: 17483107 1X04 jtl: Disability & Rehabilitation: Assistive Technology issn: 17483107 maglogo: Y pubinfo: dt: Jul2023 vid: 18 iid: 5 pid: 377 pub: Taylor & Francis Ltd place: Philadelphia, Pennsylvania artinfo: ui: 164617401 149545499 164617401 164617401 10.1080/17483107.2021.1900934 164617401 ppf: 627 ppct: 8 formats: fmt: – @attributes: type: T – @attributes: type: P tig: atl: Tablet-based patient educational interventions in care and management of complex movement disorders. aug: au: Hellmers, Natalie Barkan, Samantha Auerbach, Gabrielle Hanineva, Aneliya Popa, Paul Sarva, Harini Henchcliffe, Claire affil: Department of Neurology, Weill Cornell Medicine, Parkinson's Disease and Movement Disorders Institute, New York, NY, USA sug: subj: Computers, Portable Patient Education Methods Movement Disorders Rehabilitation Sialorrhea Rehabilitation Human Botulinum Toxins Therapeutic Use Parkinson Disease Education Dystonia Education Patient Satisfaction Office Visits Teaching Materials Prospective Studies Clinical Trials Counseling Female Male Middle Age Aged Aged, 80 and Over Adult Middle Aged: 45-64 years Aged: 65+ years Aged, 80 & over Adult: 19-44 years Female Male ab: Patient education is an essential part of management of complex, disabling neurological disorders. Mobile web-based educational materials provide a novel and potentially valuable means to communicate clinical information that can aid in both medical management and rehabilitation. We, therefore, evaluated an educational tablet-based intervention in three patient cohorts regarding the following topics: Parkinson's disease (PD) medications, dystonia and botulinum toxin treatment. A total of 50 subjects with PD, 32 with dystonia and 61 receiving botulinum toxin treatment for movement disorders or sialorrhoea were enrolled. Participants in each cohort completed a specific educational module at the time of their regularly scheduled clinic visit, comprising slides, in addition to pre- and post-module quizzes and a satisfaction survey. Additionally, participants in the dystonia and botulinum toxin modules were given a follow-up test at their 3- or 6-month clinical treatment visit. There were 143 participants with 50 completing the PD module, 32 completing the dystonia module and 61 completing the botulinum toxin module. All three groups demonstrated significant improvement in knowledge of module content between their pre- and post-module test scores (PD: p=.0001, dystonia: p<.0001 and botulinum toxin: p=.008), and those who took the dystonia module maintained significant improvement at either a 3- or 6-month follow up compared to pre-module (p <.0001). Tablet-based teaching modules are an effective means of communicating key concepts to patients. This study supports their use for improving patient understanding that can support lifelong approaches to managing disabling, neurological conditions. Tablet-based modules are relatively easy to use for enhancing education during clinic visits and can possibly help reduce and maintain disability with chronic conditions like Parkinson's disease and dystonia. Improvements in post-test scores suggested that patient participants were able to retain information from the tablets about their complex and challenging conditions and treatments. Adding patients who are fluent in another language would have made this study more generalizable and future studies exploring educational interventions are warranted to help better tailor interventions to patients with chronic neurologic illnesses to help understand the complex aspects of their medical and rehabilitation therapy. The effect of cognitive changes in neurological conditions and understanding of educational information needs to be further tested. This positive result is especially meaningful during the COVID-19 pandemic when in-person access to both medical and rehabilitative care has been curtailed. pubtype: Academic Journal doctype: clinical trial research tables/charts Journal Article ougenre: Article language: English refInfo: holdings: @attributes: islocal: N |
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