'Thinking about myself?' Experiences of parents of adolescents with cerebral palsy: A qualitative study to guide the implementation of a service for families.
Background: Recently, there has been an increase in the development of transition services for adolescents with cerebral palsy (CP). Studies have emphasized the importance of addressing parents' needs during their children's adolescence. Aims: This study aimed to understand how parents experience th...
| Publicado en: | Child: Care, Health & Development Vol. 49; no. 5; pp. 870 - 879 |
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| Autores principales: | , , , , , |
| Formato: | research tables/charts Journal Article |
| Publicado: |
Wiley-Blackwell
Sep2023
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| Acceso en línea: | Ver este registro en EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ccm&AN=169706712&site=ehost-live header: @attributes: shortDbName: ccm uiTerm: 169706712 longDbName: CINAHL Complete uiTag: AN controlInfo: bkinfo: dissinfo: jinfo: jid: 03051862 6NX jtl: Child: Care, Health & Development issn: 03051862 maglogo: Y pubinfo: dt: Sep2023 vid: 49 iid: 5 pid: 480 pub: Wiley-Blackwell place: Malden, Massachusetts artinfo: ui: 169706712 161198993 169706712 169706712 10.1111/cch.13094 169706712 ppf: 870 ppct: 9 formats: fmt: – @attributes: type: T – @attributes: type: C – @attributes: type: P tig: atl: 'Thinking about myself?' Experiences of parents of adolescents with cerebral palsy: A qualitative study to guide the implementation of a service for families. aug: au: Silvério, Ana Paula M. Mancini, Marisa C. Antunes, Fernanda I. T. Figueiredo, Priscilla R. P. Bueno, Kátia M. P. Brandão, Marina B. affil: Graduate Program in Rehabilitation Sciences, Universidade Federal de Minas Gerais, Belo Horizonte, Brazil sug: subj: Caregiver Support Parental Attitudes Cerebral Palsy In Adolescence Implementation Science Family Program Evaluation Content Validity Outcome Assessment Transitional Care In Adulthood Qualitative Studies Human Family Support Behavioral Changes Community Living Adolescence Adult Descriptive Statistics Psychological Well-Being Comparative Studies Adolescent: 13-18 years Adult: 19-44 years ab: Background: Recently, there has been an increase in the development of transition services for adolescents with cerebral palsy (CP). Studies have emphasized the importance of addressing parents' needs during their children's adolescence. Aims: This study aimed to understand how parents experience the adolescence and transition to adulthood of their adolescents with CP and to identify relevant components for the development of a service for families. Methods and procedures: A qualitative study was conducted with 18 families of adolescents with CP. Caregivers were purposely recruited from a transition programme called Adolescence in Focus Program. Individual interviews were conducted using a semistructured script. Then, the caregivers were invited to participate in focus groups. The interviews and focus groups were recorded and transcribed for content analysis. Results: Three categories emerged: 'The onset of adolescence', 'What will our future be?' and 'Support and services: paths to follow'. The adolescents' behavioural changes seemed to be intensified by their restricted social participation. Parents reported the desire for their adolescents to become independent in daily activities. Regarding their own future, they aimed to re‐establish the occupational roles that were interrupted. Conclusion: Information from this study guided the design of a programme for families regarding content, format and outcomes. pubtype: Academic Journal doctype: research tables/charts Journal Article ougenre: Article language: English refInfo: holdings: @attributes: islocal: N |
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