Feasibility of Targeted Next-Generation DNA Sequencing for Expanding Population Newborn Screening.

BACKGROUND: Newborn screening (NBS) is an effective public health intervention that reduces death and disability from treatable genetic diseases, but many conditions are not screened due to a lack of a suitable assay. Whole genome and whole exome sequencing can potentially expand NBS but there remai...

Descripción completa

Detalles Bibliográficos
Publicado en:Clinical Chemistry Vol. 69; no. 8; pp. 890 - 901
Autores principales: Oh Vic Shum, Bennett, Pretorius, Carel Jacobus, Min Fen Sng, Letitia, Henner, Ilya, Barahona, Paulette, Basar, Emre, McGill, Jim, Wilgen, Urs, Zournazi, Anna, Downie, Lilian, Taylor, Natalie, Cheney, Liam, Wu, Sylvania, Twine, Natalie Angela, Bauer, Denis Carolin, Watts, Gerald Francis, Navilebasappa, Akash, Kumar, Kishore Rajagopal, Ungerer, Jacobus Petrus Johannes, Bennett, Glenn
Formato: Journal Article
Publicado: Oxford University Press / USA Aug2023
Acceso en línea:Ver este registro en EBSCOhost
fields @attributes:
  recordID: 1
pdfLink:
plink: https://search.ebscohost.com/login.aspx?direct=true&db=ccm&AN=169839252&site=ehost-live
header:
  @attributes:
    shortDbName: ccm
    uiTerm: 169839252
    longDbName: CINAHL Complete
    uiTag: AN
  controlInfo:
    bkinfo:
    dissinfo:
    jinfo:
      jid:
        00099147
        10CS
      jtl: Clinical Chemistry
      issn: 00099147
      maglogo: N
    pubinfo:
      dt: Aug2023
      vid: 69
      iid: 8
      pid: 622
      pub: Oxford University Press / USA
    artinfo:
      ui:
        169839252
        10.1093/clinchem/hvad066
        169839252
      ppf: 890
      ppct: 11
      formats:
        fmt:
          @attributes:
            type: P
      tig:
        atl: Feasibility of Targeted Next-Generation DNA Sequencing for Expanding Population Newborn Screening.
      aug:
        au:
          Oh Vic Shum, Bennett
          Pretorius, Carel Jacobus
          Min Fen Sng, Letitia
          Henner, Ilya
          Barahona, Paulette
          Basar, Emre
          McGill, Jim
          Wilgen, Urs
          Zournazi, Anna
          Downie, Lilian
          Taylor, Natalie
          Cheney, Liam
          Wu, Sylvania
          Twine, Natalie Angela
          Bauer, Denis Carolin
          Watts, Gerald Francis
          Navilebasappa, Akash
          Kumar, Kishore Rajagopal
          Ungerer, Jacobus Petrus Johannes
          Bennett, Glenn
        affil: Preventive Health Division, Genepath, Sydney, NSW, Australia
      sug:
      ab: BACKGROUND: Newborn screening (NBS) is an effective public health intervention that reduces death and disability from treatable genetic diseases, but many conditions are not screened due to a lack of a suitable assay. Whole genome and whole exome sequencing can potentially expand NBS but there remain many technical challenges preventing their use in population NBS. We investigated if targeted gene sequencing (TGS) is a feasible methodology for expanding NBS. METHODS: We constructed a TGS panel of 164 genes which screens for a broad range of inherited conditions. We designed a high-volume, low-turnaround laboratory and bioinformatics workflow that avoids the technical and data interpretation challenges associated with whole genome and whole exome sequencing. A methods-based analytical validation of the assay was completed and test performance in 2552 newborns examined. We calculated annual birth estimates for each condition to assess cost-effectiveness. RESULTS: Assay analytical sensitivity was >99% and specificity was 100%. Of the newborns screened, 1.3% tested positive for a condition. On average, each individual had 225 variants to interpret and 1.8% were variants of uncertain significance (VUS). The turnaround time was 7 to 10 days. Maximum batch size was 1536 samples. CONCLUSIONS: We demonstrate that a TGS assay could be incorporated into an NBS program soon to increase the number of conditions screened. Additionally, we conclude that NBS using TGS may be cost-effective.
      pubtype: Academic Journal
      doctype: Journal Article
      ougenre: Article
    language: English
    refInfo:
    holdings:
      @attributes:
        islocal: N