Cancer Advocacy & Patient Education (CAPE) Lung Pilot Study Evaluation: Findings From 4 Diverse Clinical Settings for Future Implementation and Dissemination.

Background: The CAPE Lung initiative is a web-based patient education platform created by the Academy of Oncology Nurse & Patient Navigators (AONN+); it is designed to improve patient education and enhance patient care. CAPE permits navigators and cancer care teams to send patients "e-prescriptions"...

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Detalles Bibliográficos
Publicado en:Journal of Oncology Navigation & Survivorship Vol. 14; no. 8; pp. 235 - 247
Autores principales: Fleisher, Linda, Kenny, Cassidy, Gentry, Emily
Formato: research tables/charts Journal Article
Publicado: Amplity Health Aug2023
Acceso en línea:Ver este registro en EBSCOhost
Descripción
Sumario:Background: The CAPE Lung initiative is a web-based patient education platform created by the Academy of Oncology Nurse & Patient Navigators (AONN+); it is designed to improve patient education and enhance patient care. CAPE permits navigators and cancer care teams to send patients "e-prescriptions" that contain personalized education customized for each patient's circumstances and treatment status. Objectives: Fox Chase Cancer Center (FCCC) in collaboration with AONN+ conducted a pilot study to evaluate patient efficacy, provider feedback, and implementation of CAPE Lung using an implementation science framework in diverse cancer settings. Methods: Patients were recruited to the evaluation at each site and completed a baseline survey, received personalized e-prescriptions, and completed a 1-month follow-up survey over the phone with the FCCC research team about their experience with CAPE. Implementation strategies were site specific and tailored to meet the needs of each site's clinical workflows. The perceived usefulness and educational value of the CAPE platform across the diverse sites were measured through meeting notes, debrief interviews with site staff, and a focus group with navigators beyond the pilot sites. Results: Fifty-three English-speaking patients with non--small cell lung cancer were enrolled in the CAPE program within 12 weeks of their diagnosis. The majority of the patients who used the CAPE resources viewed it positively. However, some patients felt overwhelmed by their diagnosis or other external factors. In reviewing the implementation data, several factors were identified that influenced the potential effectiveness of CAPE, such as overwhelmed patients, short-staffing, low technology literacy, and provider handoffs throughout the trajectory of care. Conclusion: Overall, patients and providers felt that CAPE is a supportive resource, that it fit within patient workflow practices and matched patient educational needs. Based on these findings, AONN+ believes there are strategic points in the patient care process at which CAPE could be introduced into the treatment trajectory. A one-size-fits-all approach to implementation timing may not be optimal, and the insights from these preliminary findings will guide future implementation and dissemination of CAPE.