Design, Implementation, and Usability Evaluation of the Iranian Primary Vitiligo Patient Registry.
INTRODUCTION: Vitiligo is an acquired pigmentary disorder, which is usually progressive and irreversible if left untreated. Structured databases such as registries are required to continuously collect standard data about patients with the same disease. OBJECTIVES: This study aimed to design and impl...
| Publicado en: | Journal of the Dermatology Nurses' Association Vol. 15; no. 4; pp. 196 - 206 |
|---|---|
| Autores principales: | , , , , , , |
| Formato: | pictorial research tables/charts Journal Article |
| Publicado: |
Lippincott Williams & Wilkins
Jul/Aug2023
|
| Acceso en línea: | Ver este registro en EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ccm&AN=169981328&site=ehost-live header: @attributes: shortDbName: ccm uiTerm: 169981328 longDbName: CINAHL Complete uiTag: AN controlInfo: bkinfo: dissinfo: jinfo: jid: 1945760X 8UUC jtl: Journal of the Dermatology Nurses' Association issn: 1945760X maglogo: N pubinfo: dt: Jul/Aug2023 vid: 15 iid: 4 pid: 433 pub: Lippincott Williams & Wilkins place: Baltimore, Maryland artinfo: ui: 169981328 169981328 169981328 10.1097/JDN.0000000000000748 169981328 ppf: 196 ppct: 10 formats: tig: atl: Design, Implementation, and Usability Evaluation of the Iranian Primary Vitiligo Patient Registry. aug: au: Arabkermani, Zahra Sharifian, Roxana Aryanian, Zeinab Bastani, Peivand Esmaeli, Nafiseh Bashiri, Azadeh Sheikhtaheri, Abbas affil: PhD, Department of Health Information Management, School of Health Management and Information Sciences, Health Human Resources Research Center, Clinical Education Research Center, Shiraz University of Medical Sciences, Shiraz, Iran sug: subj: Registries, Disease Methods Vitiligo Software Design Data Collection Registries, Disease Evaluation Human Male Female Adult Middle Age Aged Aged, 80 and Over Iran Usability Study Databases, Health Minimum Data Set Funding Source Delphi Technique Questionnaires Structured Questionnaires Open-Ended Questionnaires Summated Rating Scaling Descriptive Statistics Data Analysis Software Academic Medical Centers Scales Adult: 19-44 years Middle Aged: 45-64 years Aged: 65+ years Aged, 80 & over Male Female ab: INTRODUCTION: Vitiligo is an acquired pigmentary disorder, which is usually progressive and irreversible if left untreated. Structured databases such as registries are required to continuously collect standard data about patients with the same disease. OBJECTIVES: This study aimed to design and implement a vitiligo registry and evaluate its usability in Iran. METHODOLOGY: This research was conducted in four stages: determining the minimum data set required for the registry, creating a conceptual model using unified modeling language diagrams and Sparx Enterprise Architect software, implementing the registry in the PhpStorm programming environment, and evaluating the software usability based on the responses of 17 end users to a questionnaire. RESULTS: The required data items, consisting of 127 items in eight categories, were approved by the experts and used to design the vitiligo registry. Then, the software was designed and implemented. In the assessment stage, the software received a 89.5% approval rate from its users. CONCLUSION: Developing a vitiligo registry with high usability as well as making decisions based on the registry data can improve understanding of the disease and facilitate research in this field. As a result, high-quality services could be provided to patients nationwide. pubtype: Academic Journal doctype: pictorial research tables/charts Journal Article ougenre: Article language: English refInfo: holdings: @attributes: islocal: N |
|---|