Experiences of Health Service Access and Use for People Living with Parkinson's Disease in Ireland: A National Survey.
Background. Despite the growing prevalence of Parkinson's disease (PD) and the need to plan for future health service provision, little is known in the Irish context about PD patients' experiences of service access/use. Methods. A cross-sectional survey, with multiple formats, i.e., online, pen-and-...
| Publicado en: | Health & Social Care in the Community pp. 1 - 10 |
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| Autores principales: | , , , , , |
| Formato: | research tables/charts Journal Article |
| Publicado: |
Wiley-Blackwell
8/9/2023
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| Acceso en línea: | Ver este registro en EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ccm&AN=170394043&site=ehost-live header: @attributes: shortDbName: ccm uiTerm: 170394043 longDbName: CINAHL Complete uiTag: AN controlInfo: bkinfo: dissinfo: jinfo: jid: 09660410 EVX jtl: Health & Social Care in the Community issn: 09660410 maglogo: Y pubinfo: dt: 8/9/2023 pid: 480 pub: Wiley-Blackwell place: Malden, Massachusetts artinfo: ui: 170394043 170394043 170394043 10.1155/2023/8514175 170394043 ppf: 1 ppct: 9 formats: fmt: – @attributes: type: T – @attributes: type: P tig: atl: Experiences of Health Service Access and Use for People Living with Parkinson's Disease in Ireland: A National Survey. aug: au: O' Shea, Emma Rukundo, Aphie Bennett, Kathleen Foley, Geraldine Wilkinson, Tony Timmons, Suzanne affil: Centre for Gerontology and Rehabilitation, School of Medicine, University College Cork, Cork, Ireland sug: subj: Parkinsonian Disorders Diagnosis Patient Attitudes Ireland Health Services Accessibility Health Resource Utilization Human Male Female Ireland Surveys Cross Sectional Studies Descriptive Statistics Data Analysis Software Chi Square Test Mann-Whitney U Test Kruskal-Wallis Test Adult Middle Age Aged Aged, 80 and Over Adult: 19-44 years Middle Aged: 45-64 years Aged: 65+ years Aged, 80 & over Male Female ab: Background. Despite the growing prevalence of Parkinson's disease (PD) and the need to plan for future health service provision, little is known in the Irish context about PD patients' experiences of service access/use. Methods. A cross-sectional survey, with multiple formats, i.e., online, pen-and-paper, and telephone. Data were collected from May 2020 to July 2021 using a multipronged recruitment strategy. The survey was completed by people with PD alone or with the support of a carer/support person. Results. A total of 1402 responses were included. Over half (53%) were male. Approx. 10% were diagnosed with young-onset PD. A minority (6%) reported attending only their GP to manage their PD, with the rest attending a generic or specialist outpatient clinic. Almost 1-in-5 reported it took more than 12 months to obtain the diagnosis. Most were diagnosed by neurologists (84%), followed by GPs (8%) and geriatricians (7%); 1% indicated "other." Of those diagnosed privately, 37% of these patients subsequently switched to the public system for ongoing management. The majority (97%) reported currently taking PD medications, but just 52% believed these were working effectively. Access to the range of health and social care professionals, including PD nurse specialists and clinical therapies is universally poor. Conclusions. A number of significant gaps in PD care are discussed, which require urgent attention. A reconfigured model of PD care is necessary to accommodate the growing need for specialist, integrated care at the population level. Specifically, more PD nurse specialists are needed within the public health system. pubtype: Academic Journal doctype: research tables/charts Journal Article ougenre: Article language: English refInfo: holdings: @attributes: islocal: N |
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