Transition Readiness Assessment in Adolescents and Young Adults with Neurofibromatosis Type 1 (NF1).

Neurofibromatosis type 1 (NF1) conveys significant disease morbidity and lower quality of life compared to the general population. Research has shown that decreased positive health outcomes are directly correlated with inadequate development of health-related self-management skills among similar pat...

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Detalles Bibliográficos
Publicado en:Comprehensive Child & Adolescent Nursing Vol. 46; no. 3; pp. 223 - 240
Autores principales: Goetsch Weisman, Allison, Haws, Tina, Lee, Joanna, Lewis, Andrea M., Srdanovic, Nina, Radtke, Heather B.
Formato: research tables/charts Journal Article
Publicado: Taylor & Francis Ltd Sep2023
Acceso en línea:Ver este registro en EBSCOhost