The Health-Seeking Experience of Patients With Sjögren's Syndrome.
Background: The multiple symptoms of Sjögren's syndrome lead patients affected by this disease to seek medical advice from different medical disciplines and specialists. Diagnoses are often made many years after initial onset, resulting in mental and physical exhaustion and misunderstandings. Purpos...
| Publicado en: | Journal of Nursing Vol. 70; no. 5; pp. 36 - 44 |
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| Autores principales: | , , , , , , |
| Formato: | research Journal Article |
| Publicado: |
Taiwan Nurses Association
Oct2023
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| Acceso en línea: | Ver este registro en EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ccm&AN=172340732&site=ehost-live header: @attributes: shortDbName: ccm uiTerm: 172340732 longDbName: CINAHL Complete uiTag: AN controlInfo: bkinfo: dissinfo: jinfo: jid: 31051049 H8H jtl: Journal of Nursing issn: 31051049 maglogo: N pubinfo: dt: Oct2023 vid: 70 iid: 5 pid: 12979 pub: Taiwan Nurses Association place: , <Blank> artinfo: ui: 172340732 172340732 172340732 10.6224/JN.202310_70(5).06 172340732 ppf: 36 ppct: 8 formats: fmt: @attributes: type: P tig: atl: The Health-Seeking Experience of Patients With Sjögren's Syndrome. aug: au: Chih-Yu PENG Mei-Ping LIU Pin-Hsuan LEE Cheng-I YANG Huai-Ti HSIEH Meng-Chen HSIEH Li-Hung LEE affil: Assistant Head Nurse, Department of Nursing, Yuanlin Christian Hospital sug: subj: Attitude to Health Help Seeking Behavior Sjogren's Syndrome Human Qualitative Studies Purposive Sample Interviews Content Analysis Thematic Analysis Quality of Life Coping ab: Background: The multiple symptoms of Sjögren's syndrome lead patients affected by this disease to seek medical advice from different medical disciplines and specialists. Diagnoses are often made many years after initial onset, resulting in mental and physical exhaustion and misunderstandings. Purpose: This study was designed to explore the health-seeking experiences of patients with Sjögren's syndrome. Methods: Qualitative research methods and purposive sampling were used. Fourteen patients with Sjögren's syndrome were interviewed by the first author, and the collected data were analyzed using content analysis. Results: Four themes were revealed from the data, including: (1) distressing symptoms; (2) difficulty in diagnosis; (3) concerns about drug side effects; and (4) facing the disease. The participants initially sought medical attention when they began experiencing early onset symptoms that caused discomfort or annoyance. Their doctors' failure to provide proper diagnoses during the long health-seeking process caused a great deal of suffering to the participants. Although related medications should be taken for life, the participants reported taking lower-than-prescribed dosages out of fear of side-effects. The participants explored their process of coping with the disease, which began with denial and ended with acceptance. By learning from their health-seeking process, participants realized that they needed to take proper care of themselves, adapt to life with their disease, and control related symptoms. Conclusions/ Implications for Practice: To facilitate the early diagnosis of Sjögren's syndrome, healthcare professionals should improve their awareness of this condition and refer patients with related symptoms to rheumatologists and immunologists. Effective early diagnosis and treatment can help these patients reduce the time and effort involved in unproductive doctor's visits, allowing them to better continue as productive members of society and to maintain a good quality of life. pubtype: Academic Journal doctype: research Journal Article ougenre: Article language: Chinese refInfo: holdings: @attributes: islocal: N |
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