Unraveling non‐participation in genomic research: A complex interplay of barriers, facilitators, and sociocultural factors.

Although genomic research offering next‐generation sequencing (NGS) has increased the diagnoses of rare/ultra‐rare disorders, populations experiencing health disparities infrequently participate in these studies. The factors underlying non‐participation would most reliably be ascertained from indivi...

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Publicado en:Journal of Genetic Counseling Vol. 32; no. 5; pp. 993 - 1009
Autores principales: McConkie‐Rosell, Allyn, Spillmann, Rebecca C., Schoch, Kelly, Sullivan, Jennifer A., Walley, Nicole, McDonald, Marie, Hooper, Stephen R., Shashi, Vandana, Adam, Margaret, Adams, David R., Alvey, Justin, Amendola, Laura, Andrews, Ashley, Ashley, Euan A., Azamian, Mahshid S., Bacino, Carlos A., Bademci, Guney, Balasubramanyam, Ashok, Baldridge, Dustin, Bale, Jim
Formato: research tables/charts Journal Article
Publicado: Wiley-Blackwell Oct2023
Acceso en línea:Ver este registro en EBSCOhost