Developing an Implementation Blueprint for the NIH HEAL Initiative GRACE Trial: Perspectives on Acupuncture and Guided Relaxation for Chronic Sickle Cell Disease Pain.

Objective: This study aimed to explore perspectives of people living with sickle cell disease (SCD) and SCD clinic providers and staff about the use of acupuncture and guided relaxation for treating chronic SCD pain. Data obtained were to inform an implementation blueprint for an effectiveness imple...

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Publicado en:Journal of Integrative & Complementary Medicine Vol. 29; no. 10; pp. 683 - 689
Autores principales: Knisely, Mitchell R., Rivera, Eleanor, deMartelly, Victoria A., Abdulkadir, Aisha, Doorenbos, Ardith Z., Ezenwa, Miriam O., Molokie, Robert E., Li, Hongjin, Shah, Nirmish, Schlaeger, Judith M., Patil, Crystal L.
Formato: research Journal Article
Publicado: Mary Ann Liebert, Inc. Oct2023
Acceso en línea:Ver este registro en EBSCOhost
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      dt: Oct2023
      vid: 29
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      pub: Mary Ann Liebert, Inc.
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        10.1089/jicm.2022.0781
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        atl: Developing an Implementation Blueprint for the NIH HEAL Initiative GRACE Trial: Perspectives on Acupuncture and Guided Relaxation for Chronic Sickle Cell Disease Pain.
      aug:
        au:
          Knisely, Mitchell R.
          Rivera, Eleanor
          deMartelly, Victoria A.
          Abdulkadir, Aisha
          Doorenbos, Ardith Z.
          Ezenwa, Miriam O.
          Molokie, Robert E.
          Li, Hongjin
          Shah, Nirmish
          Schlaeger, Judith M.
          Patil, Crystal L.
        affil: Duke University School of Nursing, Durham, NC, USA.
      sug:
        subj:
          Anemia, Sickle Cell Therapy
          Acupuncture Methods
          Relaxation Techniques Methods
          Chronic Pain Therapy
          Implementation Science
          Human
          Relaxation
          Qualitative Studies
          Health Personnel
          Program Development
          Pain Management Methods
          Communication Methods
          Alternative Therapies
          Semi-Structured Interview
          Health Services Accessibility
          Clinical Trial Registry
          Descriptive Statistics
      ab: Objective: This study aimed to explore perspectives of people living with sickle cell disease (SCD) and SCD clinic providers and staff about the use of acupuncture and guided relaxation for treating chronic SCD pain. Data obtained were to inform an implementation blueprint for an effectiveness implementation clinical trial (GRACE Trial) testing whether acupuncture or guided relaxation reduces chronic pain when compared with usual care. Design: Qualitative research design. Methods: We conducted 33 semistructured interviews with people with SCD and SCD clinic providers and staff. Interviews were transcribed and coded. A deductive content analysis process was used to identify themes. Results: Four themes were identified: Receptivity to Acupuncture and Guided Relaxation, Limited Awareness, Complementary and Integrative Health (CIH) Therapy Preference, and Access Barriers. Both patients and clinic providers and staff were open to the use of acupuncture and guided relaxation for chronic pain treatment. After learning about these CIH therapies, some patients expressed a preference for one therapy over the other. They also discussed their ability to successfully engage with each therapy. There is a need to dispel misconceptions about the therapies by increasing understanding of how each therapy is implemented and functions to reduce pain. We identified several potential barriers that might affect the success of the trial and future health system integration, including time, transportation, and technology. Conclusion: This study is one of the first to present perspectives of both patients with SCD and clinic providers and staff on the use of acupuncture and guided relaxation for chronic SCD pain. Stakeholders' early input and perspectives highlighted that they welcome nonpharmacological CIH therapies. Implementation of a clinical trial and future health system integration will require the addressing misinformation and identifying strategies to overcome access barriers. Clinical trial registration number: NCT04906447.
      pubtype: Academic Journal
      doctype:
        research
        Journal Article
      ougenre: Article
    language: English
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