A Roadmap to Enhance Care for People Living With Primary Progressive Aphasia: What Can Be Done Now?
Purpose: People living with primary progressive aphasia (PwPPA) face a progressive decline in speech, language, and communication capabilities. PwPPA live with relatively well-preserved cognition, which further contributes to their insight and grief resulting from the losses of language and independ...
| Publicado en: | Perspectives of the ASHA Special Interest Groups Vol. 8; no. 5; pp. 847 - 863 |
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| Autor principal: | |
| Formato: | pictorial tables/charts Journal Article |
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American Speech-Language-Hearing Association
Oct2023
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| Acceso en línea: | Ver este registro en EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ccm&AN=172961332&site=ehost-live header: @attributes: shortDbName: ccm uiTerm: 172961332 longDbName: CINAHL Complete uiTag: AN controlInfo: bkinfo: dissinfo: jinfo: jid: 2381473X KTSD jtl: Perspectives of the ASHA Special Interest Groups issn: 2381473X maglogo: N pubinfo: dt: Oct2023 vid: 8 iid: 5 pid: 42 pub: American Speech-Language-Hearing Association place: Rockville, Maryland artinfo: ui: 172961332 172961332 172961332 10.1044/2023_PERSP-23-00025 172961332 ppf: 847 ppct: 16 formats: fmt: @attributes: type: P tig: atl: A Roadmap to Enhance Care for People Living With Primary Progressive Aphasia: What Can Be Done Now? aug: au: Gallée, Jeanne affil: Department of Psychology, Institute for Learning and Brain Sciences, University of Washington, Seattle sug: subj: Aphasia Therapy Disease Progression Therapy Quality of Health Care Quality Improvement Aphasia Psychosocial Factors Speech-Language Pathologists Health Services Accessibility Professional Role Patient Centered Care Aphasia Diagnosis Referral and Consultation Patient Advocacy ab: Purpose: People living with primary progressive aphasia (PwPPA) face a progressive decline in speech, language, and communication capabilities. PwPPA live with relatively well-preserved cognition, which further contributes to their insight and grief resulting from the losses of language and independence, as well as the misconceptions surrounding the condition. This clinical focus article underscores the clinical necessity of enhancing access to and the quality of care provided to PwPPA while highlighting the unique role of the speech-language pathologist in these services. To help accomplish this, evidence-based practice informed by the current literature is offered to speech-language pathologists working with this target population. Conclusions: Palliative, person-centered services for the assessment and management of PPA are necessary to shape the most optimal care trajectory of PwPPA and their care partners. Speech-language pathologists can take concrete steps to improve the assessment and intervention experiences for their clients living with this condition. These steps should include (a) clearly defining the speech-language pathologist's role, (b) providing person-centered processes of assessment, management, and care, (c) defining the provider team, (d) advocating for the client across health care professions, (e) and knowing when to refer out to additional services. pubtype: Academic Journal doctype: pictorial tables/charts Journal Article ougenre: Article language: English refInfo: holdings: @attributes: islocal: N |
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