Therapeutic positioning to address neuromuscular scoliosis on an adolescent child with Aicardi syndrome: a case study.

Among persons with neuromuscular mobility limitations, therapeutic positioning has been implemented to improve body function, avoid secondary complications such as contractures and body shape distortions, and optimize body energy through restorative sleep. This case study describes the application o...

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Publicado en:Assistive Technology Vol. 35; no. 6; pp. 506 - 513
Autores principales: Kittelson, Tamara, Coombs, Nicholas C.
Formato: case study pictorial research tables/charts Journal Article
Publicado: Taylor & Francis Ltd 2023
Acceso en línea:Ver este registro en EBSCOhost
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      pub: Taylor & Francis Ltd
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        10.1080/10400435.2023.2179684
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        atl: Therapeutic positioning to address neuromuscular scoliosis on an adolescent child with Aicardi syndrome: a case study.
      aug:
        au:
          Kittelson, Tamara
          Coombs, Nicholas C.
        affil: Posture 24-7, Minneapolis, Minnesota, USA
      sug:
        subj:
          Aicardi Syndrome Complications
          Scoliosis Diagnosis
          Neuromuscular Diseases Diagnosis
          Posture
          Therapeutic Exercise
          Human
          Female
          Adolescence
          Descriptive Statistics
          Data Analysis Software
          Adolescent: 13-18 years
          Female
      ab: Among persons with neuromuscular mobility limitations, therapeutic positioning has been implemented to improve body function, avoid secondary complications such as contractures and body shape distortions, and optimize body energy through restorative sleep. This case study describes the application of a 24-hour posture care management intervention for a preadolescent girl with Aicardi syndrome. The intervention was administered by adding therapeutic bed positioning to use of a custom molded wheelchair seating system. Over the 6-year intervention period overlapping with the subject's adolescent years (age 11–17), marked improvement was observed in thoracic shape and symmetry. Moreover, the subject's mother reported regular full-nights of uninterrupted sleep, relaxed muscle tone upon waking, a stronger cough with less audible congestion, more efficient swallowing and zero hospitalizations. The 24-hour posture care management intervention offers an alternative option for families and caregivers of persons with neuromuscular mobility impairments who wish to use a low-risk, noninvasive, locally available approach to improve body symmetry, increase hours of restorative sleep, and ease caregiving routines. Further research in 24-hour posture care management, including positioning for sleep and rest, should be explored in individuals with complex movement limiting disabilities who are at risk of developing neuromuscular scoliosis.
      pubtype: Academic Journal
      doctype:
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      ougenre: Article
    language: English
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