Barriers to connecting with the voluntary assisted dying system in Victoria, Australia: A qualitative mixed method study.
Introduction: Voluntary assisted dying (VAD) is increasingly being legalised internationally. In Australia, all six states have now passed such laws, with Victoria being the first in 2019. However, early research in Victoria on the patient experience of seeking VAD shows that finding a connection to...
| Publicado en: | Health Expectations Vol. 26; no. 6; pp. 2695 - 2709 |
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| Autores principales: | , , |
| Formato: | research tables/charts Journal Article |
| Publicado: |
Wiley-Blackwell
Dec2023
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| Acceso en línea: | Ver este registro en EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ccm&AN=173516566&site=ehost-live header: @attributes: shortDbName: ccm uiTerm: 173516566 longDbName: CINAHL Complete uiTag: AN controlInfo: bkinfo: dissinfo: jinfo: jid: 13696513 EVY jtl: Health Expectations issn: 13696513 maglogo: Y pubinfo: dt: Dec2023 vid: 26 iid: 6 pid: 480 pub: Wiley-Blackwell place: Malden, Massachusetts artinfo: ui: 173516566 171837752 173516566 173516566 10.1111/hex.13867 173516566 ppf: 2695 ppct: 14 formats: fmt: – @attributes: type: T – @attributes: type: P tig: atl: Barriers to connecting with the voluntary assisted dying system in Victoria, Australia: A qualitative mixed method study. aug: au: White, Ben P. Jeanneret, Ruthie Willmott, Lindy affil: Australian Centre for Health Law Research, Faculty of Business and Law, Queensland University of Technology, Brisbane Queensland, , Australia sug: subj: Suicide, Assisted Legislation and Jurisprudence Health Services Accessibility Physicians Legislation and Jurisprudence Health Literacy Caregiver Attitudes Evaluation Patient Attitudes Evaluation Human Male Female Adult Middle Age Aged Aged, 80 and Over Multimethod Studies Australia Semi-Structured Interview Data Analysis Software Interview Guides Victoria Thematic Analysis Content Analysis Funding Source Convenience Sample Purposive Sample Patient Navigation Eligibility Determination Adult: 19-44 years Middle Aged: 45-64 years Aged: 65+ years Aged, 80 & over Male Female ab: Introduction: Voluntary assisted dying (VAD) is increasingly being legalised internationally. In Australia, all six states have now passed such laws, with Victoria being the first in 2019. However, early research in Victoria on the patient experience of seeking VAD shows that finding a connection to the VAD system is challenging. This study analyses the causes of this 'point of access' barrier. Methods: We conducted semi‐structured qualitative interviews with family caregivers and a person seeking VAD, with participants recruited via social media and patient interest groups. Data were thematically analysed. We also undertook documentary analysis (content and thematic) of publicly available reports from the oversight body, the Voluntary Assisted Dying Review Board. Results: We interviewed 32 family caregivers and one patient across 28 interviews and analysed six Board reports. Finding a point of access to the VAD system was reported as challenging in both interviews and reports. Four specific barriers to connecting with the system were identified: (1) not knowing VAD exists as a legal option; (2) not recognising a person is potentially eligible for VAD; (3) not knowing next steps or not being able to achieve them in practice; and (4) challenges with patients being required to raise the topic of VAD because doctors are legally prohibited from doing so. Conclusion: Legal, policy and practice changes are needed to facilitate patients being able to find a connection to the VAD system. The legal prohibition on doctors raising the topic of VAD should be repealed, and doctors and institutions who do not wish to be involved in VAD should be required to connect patients with appropriate contacts within the system. Community awareness initiatives are needed to enhance awareness of VAD, especially given it is relatively new in Victoria. Patient or Public Contribution: Families and a patient were the focus of this research and interviews with them about the experience of seeking VAD were the primary source of data analysed. This article includes their solutions to address the identified point of access barriers. Patient interest groups also supported the recruitment of participants. pubtype: Academic Journal doctype: research tables/charts Journal Article ougenre: Article language: English refInfo: holdings: @attributes: islocal: N |
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