Shared Decision-Making: Process for Design and Implementation of a Decision Aid for Patients With Craniosynostosis.
Objective : To describe the process of developing a craniosynostosis decision aid. Design : We conducted a mixed-methods exploratory study between August 2019 and March 2020 to develop a decision aid about surgical treatment for single suture craniosynostosis. Setting : A single tertiary care academ...
| Publicado en: | Cleft Palate Craniofacial Journal Vol. 61; no. 1; pp. 138 - 144 |
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| Autores principales: | , , , , , , , , , |
| Formato: | research tables/charts Journal Article |
| Publicado: |
Sage Publications Inc.
Jan2024
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| Acceso en línea: | Ver este registro en EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ccm&AN=173824901&site=ehost-live header: @attributes: shortDbName: ccm uiTerm: 173824901 longDbName: CINAHL Complete uiTag: AN controlInfo: bkinfo: dissinfo: jinfo: jid: 10556656 DF1 jtl: Cleft Palate Craniofacial Journal issn: 10556656 maglogo: Y pubinfo: dt: Jan2024 vid: 61 iid: 1 pid: 344 pub: Sage Publications Inc. place: Thousand Oaks, California artinfo: ui: 173824901 173824901 173824901 10.1177/10556656221128413 173824901 ppf: 138 ppct: 6 formats: tig: atl: Shared Decision-Making: Process for Design and Implementation of a Decision Aid for Patients With Craniosynostosis. aug: au: Said, Abdullah M. Zubovic, Ema Pfeifauf, Kristin D. Skolnick, Gary B. Agboada, Jude Acayo-Laker, Penina Naidoo, Sybill D. Politi, Mary C. Smyth, Matthew Patel, Kamlesh B. affil: Division of Plastic and Reconstructive Surgery, Department of Surgery, 7548Washington University in St. Louis, St. Louis, MO, USA sug: subj: Implementation Science Decision Support Techniques Decision Making, Shared Craniosynostoses Surgery Suture Techniques Human Multimethod Studies Exploratory Research Tertiary Health Care Academic Medical Centers Hospitals, Pediatric Surgeons Research Personnel Clinical Nurse Specialists Interviews Feedback Family Psychosocial Factors Family Attitudes Evaluation ab: Objective : To describe the process of developing a craniosynostosis decision aid. Design : We conducted a mixed-methods exploratory study between August 2019 and March 2020 to develop a decision aid about surgical treatment for single suture craniosynostosis. Setting : A single tertiary care academic children's hospital. Participants : The decision aid development team consisted of surgeons, research fellows, a clinical nurse practitioner, clinical researchers with expertise in decision science, and a university-affiliated design school. Qualitative interviews (N = 5) were performed with families, clinicians (N = 2), and a helmeting orthotist to provide feedback on decision aid content, format, and usability. Interventions : After cycles of revisions and iterations, 3 related decision aids were designed and approved by the marketing arm of our institution. Distinct booklets were created to enable focused discussion of treatment options for the 3 major types of single suture craniosynostosis (sagittal, metopic, unicoronal). Results : Three decision aids representing the 3 most common forms of single suture craniosynostosis were developed. Clinicians found the decision aids could help facilitate discussions about families' treatment preferences, goals, and concerns. Conclusions : We developed a customizable decision aid for single suture craniosynostosis treatment options. This tool lays the foundation for shared decision-making by assessing family preferences and providing clear, concise, and credible information regarding surgical treatment. Future research can evaluate this tool's impact on patient–clinician discussions about families' goals and preferences for treatment. pubtype: Academic Journal doctype: research tables/charts Journal Article ougenre: Article language: English refInfo: holdings: @attributes: islocal: N |
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